Does anyone have Tumid Lupus?

Posted by kaydee01 @kaydee01, May 21, 2023

I’m wondering if anyone with Lupus (SLE) has had skin mottling (Livedo Reticularis). I’m being tested for autoimmune diseases and cancers. I have a mottling rash (violet/reddish) on my chest and arms. It came up literally overnight! I have elevated liver enzymes and tested positive for ANA, specifically AMA reticular. My first lupus test came back negative but the doctor ordered a more specific lupus anticoagulant test. My skin biopsies are scheduled for this week. I have this skin issue and fatigue. I don’t have joint issues. I’m wondering if anyone has any similar experiences or advice. I’m new to all of this.

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kaydee01 | @kaydee01 | May 25, 2023

I’m waiting on biopsy results, but the dermatologist says he’s fairly confident that I have Tumid Lupus(TLE). I have positive ANA (1:160:tiger) as well so I’m waiting on curt bloodwork to see if I have SLE as well. Does anyone have TLE? There seems to be limited information on it compared to other types of Lupus.

Colleen Young, Connect Director | @colleenyoung | May 29, 2023

In reply to @kaydee01 "Tumid Lupus Erythematosus Is pretty rare and there’s little research on it. If the biopsy confirms..." + (show)

Hi @kaydee01, if you put Tumid Lupus into the search field you'll find several discussions where members are talking about this type of lupus. Here's a link to one of the longer running discussions:
- Tumid Lupus with SLE Symptoms? https://connect.mayoclinic.org/discussion/tumid-lupus-with-sle-symptoms/

kaydee01 | @kaydee01 | May 29, 2023

In reply to @colleenyoung "Hi @kaydee01, if you put Tumid Lupus into the search field you'll find several discussions where..." + (show)

Thanks so much!

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