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MGUS and Curcumin/Tumeric

Blood Cancers & Disorders | Last Active: Sep 11, 2023 | Replies (60)

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@cheft

So, I have been taking 4500mg of Turmeric Root Extract (95% Curcuminoids with Black Pepper Extract 10%). I also take 1400mg Fish oil or Omega 3. I have been taking this every day for almost 3 months now. My MGUS diagnosis changed to Smoldering MM this past April 6th. Now, I have no idea if it is doing anything at all to slow or reduce my diagnosis. What I can tell you is without question I feel better, less aches and pains and more energy and sleep better. And I haven’t slept well for decades.
I have my first visit and evaluation at the Mayo in Rochester MN on Tuesday, simply for a second opinion. I assume they will at least do labs again next week so it will be interesting if it shows anything positive since my Curcumin regimen. I plan to keep everyone informed of my stats.
If you have read trials out there you will note uptake or absorption is vital to Curcumin efficacy. It is not easily absorbed. I plan to up my daily dose to 6000mg daily after my Mayo visit.

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Replies to "So, I have been taking 4500mg of Turmeric Root Extract (95% Curcuminoids with Black Pepper Extract..."

@cheft We are such unique individuals. Most of us do not progress from MGUS to SMM. Some take a long time, others, not so long. Personally, I think if we progress "quickly", it may be that we had the underlying MGUS as an undiagnosed condition for a long while. In my case, however, I went from MGUS diagnosis to active myeloma in about 2 years. My doctor and I attribute that to my immune system being an overachiever [said with tongue in cheek!].

The concept of supplements and all is fascinating to me. What works? What doesn't? How do we know what to do? Experiences like we share here can help us all see the possibilities.

Like @pmm mentioned, I will be curious to hear what happens at Mayo, how you are treated, and what they will be telling you are the next steps forward for you,
Ginger