← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@kelliw

Thank you Debra for your words of encouragement. My doctor is on it. I went for a walk yesterday with my husband and dog and towards the end felt really dizzy and like I was going to faint. He went and got the car and picked me up. I've been fine until yesterday. For some reason my blood pressure has been high since I was in my dr's office Thursday-really high yesterday-190/105. Luckily my dr. was on call. He said I didn't have to go to ER and he wants to put me on a BP medicine. He chose one, but then called me back to say he gave it a lot of thought and wants me to do the clonidine patch. I read about clonidine and the possible side effects are gnarly. Ugh-he said if I don't feel good I can take the patch off. I just have to trust that he knows what I need. I thought I was in smooth sailing zone and now all of this! But I am trying to stay positive. I still feel so much better than I did before! 🙂

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Replies to "Thank you Debra for your words of encouragement. My doctor is on it. I went for..."

Whoa! That IS high BP 😮
Does he think it may be a side effect of Camzyos? Have you had high BP before? I hope you get re-checked sooner than later...how scary it must be! Sailing along, doing awesome and then this. Do you think you're anxious about lowering the dose and it may be causing you stress? Have you started the Clonidine patch yet?