Does anyone have Hemicrania Continua migraine headaches?

Posted by keithtombs @keithtombs, Sep 3, 2012

Hi all. where do I start. i have had a 24/7 migraine/headache for a decade now. I have just started using a tricyclic to "dampen" its severity and so far it has helped me get my ibuprofen use down from 3 to 6 doses a day to one or two doses.i am upset with all doctors i see here in Australia who continue to call it migraine when it seems more like hemicrania continua. But all of them dismiss me when i ask them if it could be this and say the treatment is the same.does anyone else here experience a 24/7 migraine like headache?by the way... upon starting the tricyclic i have started to experience real aura migraines about once a month... this truly tells me the 24/7 headache is not actually migraine!

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Amanda Roe | @amandajro | Apr 1, 2023

In reply to @brooklyn4870 "I've had hemicrania for 9 years now. It is horrible" + (show)

Hello @brooklyn4870. I am sorry to read that you continue to struggle with hemicrania. You will notice that I have moved your post into a previous discussion you had joined in November.

Perhaps member @kdubois would be willing to rejoin this discussion and share more about her experience with migraines.

Since your last post in November, have you tried anything different?

caosborn | @caosborn | May 26, 2023

I was diagnosed with HC in 2014. Yes, it is horrible! There is so little reliable information and support out there for us. Some headache sites don't even mention HC and some that do don't seem to know what they are talking about. Having headaches 24/7 at any level of pain is disabling. My life is controlled by HC.