Connect
← Return to Anybody else have Factor V Leiden?
Discussion
Anybody else have Factor V Leiden?
Blood Cancers & Disorders | Last Active: Apr 19 12:08pm | Replies (43)Comment receiving replies
Hey there!
I was diagnosed with Factor V Leiden 3 years ago (I'm currently 39) and I have to take Warfarin for the rest of my life. Long story short - I found out I had it after developing bilateral PE (multiple clots in both lungs).
In my opinion, Warfarin is a high maintenance drug. What I mean by that is you may to have to get your INR checked (via blood draw) on a regular basis and based on what your INR is you may have to adjust your dosage. The therapeutic range for my INR is 2.0 - 3.0; if I am lower than 2, I will need to increase my dosage and if I am higher than 3, I will need to reduce my dosage. Your doctor may set you up with an anti-coagulation clinic; if he/she does, then the clinic will be the one to manage your dosage, blood draws, etc.
The main thing regarding your diet is you will have to be mindful of your Vitamin K intake (green leafy veggies like spinach, kale, etc.) because Vitamin K can affect your INR. Its super annoying to me, but if you are able to manage that than you should be. Its similar to how someone with diabetes have to watch their sugar/carb intake.
Hope this helps; let me know if you have any other questions!
Replies to "Hey there! I was diagnosed with Factor V Leiden 3 years ago (I'm currently 39) and..."
Hi, I am new to this group. My 27 yr old daughter was diagnosed with essential thrombocythemia. (gene disorder factor V). I am even in the nursing field and am totally freaked out about the situation. She has been diagnosed for appr 3 yrs. we had our first problem with a nosebleed that would not stop. she is on anagrelide. I am curious about the warfarin. It has the same effect on the blood as far as lower the platelets, but is it safer?
I'm rambling on but super scared to death......
So, when my Dad and then my Mom were on warfarin, both for heart conditions, my Mom planted some kale plants; you are suggesting that one should not eat too many leafy, green vegetables? I wonder why my Mother went for kale, is it stronger in vitamin K than spinach; knowing Mother, she would want to get all of her vitamins? The major avenue to stay away from is grapefruit, which would probably be good for me, as well as the leafy, green vegetables.
Connect
Hey there!
Thanks for the informations as they are very helpful.
Can i take other vitamins like B, C D?