My biopsy is scheduled soon on my upper right thigh (sarcoma)
Since cancers have been in my family and the look on the doctors face , says it all .. I am already assuming a sarcoma in my upper thigh . Of course I do not like what I read and have been emotional since my evaluation yesterday .. Has anyone had a sarcoma removed in upper thigh ? I like to know what I am in for moving forward . Please respond .. I can deal with a lot being a NYC kid at heart , my 10 year old boy is my biggest concern . This part of life is difficult . My father passed away when I was 27 of prostrate . I am now , Same age group as him and now it’s my turn .. A different event yet in the same ball park .. . Can people survive a long time getting these sarcomas removed ? I never thought I would be reaching out …. I just know something is not right …. I know my body . God Bless everyone here .. I get it …
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@rond306 Of course you need to do what you feel is best for you. Wishing you the best outcome, that this will all be behind you soon!
Jen , thank you … I just left a phone call with my main doctors nurse … If this was January or February I be ok with chemo or end of august … .. these are my very busy months . So I am concerned with providing financially for my family , plus I have a 10 year old soon to be 11 , a party coming up ,, baseball season full blown , and it’s summer .. So the consideration of radiation should not be tossed under the table … that will not be easy either … yet 30 minutes a day 5 days a week I can deal with … for 5 weeks …. I mean , why can’t we just see if that works , Years ago they probably would have just cut this out already .. hit or miss … .. We still might need chemo also …. Yet this gives me more time to plan … leaves me some where in July … And what if radiation works right now and can be removed afterwards .. … idk … yet Seems to me no one really knows for sure 100 percent ….. I understand doctors are not gods … I get all that … I am in a good position right now …. We all know anything can change over night … maybe cells have spread already … there are No guarantees.. .. yet I do like controlling my treatment right at this moment … You are the best …
So sorry to hear this! Can't they just remove it with surgery? You need to do what you're most comfortable with of course. You just got to take each day one step at a time. I'm shocked that that's what it was!! I'm thinking of you and your family!
I felt a little pressure from chemo doctor s team. I don’t like anyone pressuring me . No one does … Sort of a used car salesman type of deal .. Listen , they were all very nice … don’t get me wrong . Instead of saying to me you can do radiation right now , they are telling me more about chemo . And the more I read as I remember with my father and his prostrate cancer back in 88, they also have chemo pills ….. This dawned on me last night also … Sometimes you have to put doctors in check .. Tomw , I have online appt . With radiation doctor … at 9 am , then main doctor they will discuss reversing , Yet there was never a reversal in my mind … Radiation was mentioned first , from the get go , by my
Doctor , I was ok 100 percent.. there is no reason for change of course right now …. so let’s do it … .. Chemo we can do , later .. they will want to do it anyway I feel … I have to read up more on chemo in Europe ..
I do get it , use radiation , shrink the son of a gun 11 inches … grrrr ,,, then you kill off the cells … I am understanding more and more quickly .. so tomw online with radiation doc .. then of course last night I was thinking chemo pills , maybe at some point … I want to see it shrink first … I feel optimistic it will … Bottom line more money in chemo Theraphy in a hospital … I am not an expert … nor a doctor … yet , for any doctor always easier for them to say chemo … If I was in my 80 s .. I would have 2 words for them … I am not asking to live forever , give me at least 10-14 more … I be ok with that …. I think they can shrink and get this out then chemo … that makes more sense to me and why not chemo pills ? 3 days with intravenous for 8-10 hrs is no picnic ..
Bellsina , one thing has happened , of course , not ever over the emotional stress of knowing you have a cancer , yet after a few weeks , I feel pretty good dealing with this suspected monster . After many emotional break downs , I am ready to do the best I can .. I still have moments . Yet much much much less … for me once it sinks In I will fight for my life , not only physically yet emotionally .. as I said a while ago , what else is new , nothing been a cake walk in my life , like many other people .. that’s ok , I have done some very different things in my life .. I never seem to take a traditional route .. thanks again for letting me vent and for your feedback ..
Chemo early next week Jen … it’s ok …. Let’s do this … However I feel makes no difference , 3 days of intravenous , I will get over it … How are you feeling ?
Bellsina , Chemo time , 3 days of intravenous next week .. early in week …. I am excited for only one reason .. we need this monster in my thigh shrunk … then we will see next scan .. 26-27cm .. starting to press on nerve a bit …. Yet I am fine …. How are you feeling ?
@rond306 Hi Rond,
I have been watching for an update from you and am glad to hear you are fighting this thing head on! You CAN do this! I hope it responds right away and begins to shrink so they can successfully remove it all. I will be cheering you on in your battle and wish a long future with your family. Stay strong!!
I will send you a message. Take care!
Jen , this is the best possible choice . As the road ahead can be a bit bumpy at times , maybe some potholes ahead , my job is to keep this road freshly paved . So the surgery ,when we do get to that point ,of the journey is a few days in hospital and 1-3 weeks recovery … I know that can be difficult yet the easiest part for me … The scans after chemo will reveal , how I am doing . That will be huge . Scheduling of chemo will be any day now . 3 straight days of intravenous .. jeez .. movies ? Books ? Online games ? Sleep .. I have no idea sitting or laying down for 3 straight days how that feels .. I am always active at some capacity . Are you doing well physically ?