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Anybody else have Factor V Leiden?
Blood Cancers & Disorders | Last Active: Apr 19 12:08pm | Replies (43)Comment receiving replies
Good evening,
Couple days ago i joined the group under the impression (my doctor infos) that i had Factor V Lieden. This morning i made a trip to the hospital following an episode of pain in my calve. They did an ultrasound and find out that i had a minor superficial blood clot (i had one two years ago same place).Ive been taking Apixaban 10Mg every day and now they want to switch my medication and put me on Warfarin.
Can i have some information on that medication ie safer than Apixaban and what my life is going too look like once i'm on it.
But the funny story of the day is that my doctor made a mistake when he told me that I had Factor V Lieden....
I don't have that disorder but i have Prothrombin gene mutation factor 2.
Can you please also provide me with some information with that disorder and what can i eat and not.
Thanks
Replies to "Good evening, Couple days ago i joined the group under the impression (my doctor infos) that..."
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Hey there!
I was diagnosed with Factor V Leiden 3 years ago (I'm currently 39) and I have to take Warfarin for the rest of my life. Long story short - I found out I had it after developing bilateral PE (multiple clots in both lungs).
In my opinion, Warfarin is a high maintenance drug. What I mean by that is you may to have to get your INR checked (via blood draw) on a regular basis and based on what your INR is you may have to adjust your dosage. The therapeutic range for my INR is 2.0 - 3.0; if I am lower than 2, I will need to increase my dosage and if I am higher than 3, I will need to reduce my dosage. Your doctor may set you up with an anti-coagulation clinic; if he/she does, then the clinic will be the one to manage your dosage, blood draws, etc.
The main thing regarding your diet is you will have to be mindful of your Vitamin K intake (green leafy veggies like spinach, kale, etc.) because Vitamin K can affect your INR. Its super annoying to me, but if you are able to manage that than you should be. Its similar to how someone with diabetes have to watch their sugar/carb intake.
Hope this helps; let me know if you have any other questions!