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Waldenstrom macroglobulinemia: What to expect during watch & wait?

Blood Cancers & Disorders | Last Active: Nov 14, 2023 | Replies (90)
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@bobkat694

I was diagnosed and treated for Waldenstrom in Jun2018. Do you or anyone else know at what level IgM and the Kappa light chain should be to consider restarting treatment?

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deljr | @deljr | May 25, 2023

Don't know. Do know the levels you're talking about, but as they relate to restarting treatment don't know (sorry).
Take care,
Don

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Lori, Volunteer Mentor | @loribmt | May 25, 2023

Hello @bobkat694 Welcome to Mayo Connect. While you’re waiting to see if any other members can give you insight on possibly restarting treatment for WM I found an article that might be of interest from Cancer.org.
https://www.cancer.org/cancer/types/waldenstrom-macroglobulinemia/treating/people-with-wm.html
Also, if you haven’t been on their site, the International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is an outstanding educational and support resource for patients and families. https://iwmf.com/

As you’ve seen in this discussion, we have quite a few members with WM. One member in particular, @ejrquast is an IWMF support group leader and really helpful with her information and experiences with this condition.

Do you see indications that your blood numbers are changing? Your hematologist would be the best source for your particular treatments. Have they discussed any plans for future treatment with you?

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