Can someone tell me if I’m going slow enough

Posted by amdavis70 @amdavis70, May 20, 2023

Can anyone provide me with a more definitive description of what it means to “ go slow”. I think I am but suffering terribly with withdrawal. My psychiatrist doesn’t seem to know much about tapering and I have zero confidence in him.
I’m 71 years old and do not take drugs well, having tried three different antidepressants that either didn’t work or made me nuts. The only thing that worked was klonopin and have been taking it for about 14 months with a daily dose of 1 mg that I divide into 4 doses a day at .25 mg. I was never comfortable taking klonopin but every doctor or therapist I spoke with assured me that I was on a very low dose and not to worry. I wish I did my own research because nothing could be further from the truth. I started to suffer from tolerance withdrawal and so I had two choices, either up my daily dose or get off of it. I started to think the klonopin was the actual source of my anxiety and so I decided to get off it.
I asked my doctor to give me a prescription for .125 mg which I was told is the lowest dose I could get and that is what I’m using for my taper. I’m tapering down .125 mg every two weeks. I know I should be tapering at 10% but the math doesn’t work when you start to reduce the daily dose. My first taper was 12%, second taper was 14% and things were going, for the most part, pretty good. Lately it’s becoming a nightmare. It’s been 3 months now and I’m down to .375 mg daily. Tonight I’m scheduled for another taper reduction by .125 mg which would be bringing me down 33%. Don’t know how to avoid this since i only have the .125 mg to work with.
I want this nightmare to be over as soon as I can but worried I may be going to fast. Is four months a safe taper from an original dose of 1 mg? Any feedback or guidance would be greatly appreciated since I’m doing all of this on my own having no faith in the medical community. Thanks

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@amdavis70

I’m not very patient with this because I think I’m screwed if I continue to taper and I think I’m screwed where I am right now. Starting to lose hope and think I’m not ever going to be normal again and that’s when I get into a really dark place and I hate myself even more. What an evil drug this is.

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I totally understand. It’s horrible. You really and truly have to be patient with this process. Please do some research and you will find that people that go slowly and listen to their body have much, much better outcomes. You are not alone by any means. So many are going through what we’re going the due to the medical community.

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BEFORE any medication use, I ask: Am I taking care of myself in ways nature has intended? From me an Octogenarian.
1- That means: Am I eating a reasonably healthy diet? Yes starting with H2O!
2- Am I physically active enough each day without too long sedentary slots?
3- Do I use my time in intellectually/ emotionally/ spiritually rewarding acts?
Each of these points spans a whole gamut of life but we all come out of our mothers fairly well-equipped to stay the healthful life course.
So I rarely see doctors, nearly no meds, or tests, and sleep well because I am tired physically and mentally by the day's end AND know what Important work next day awaits me: To Live Purposeful Life.
Diseases and disabilities so far have spared me even though I am in among the financially privileged bu I know how to stretch dollar. I buy food on sale and have a wholesome food within $10 a Day.
I hope it helps to some of the queries here. Good Luck, Fellow Travelers.

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@clutch

@amdavis70
I’m elderly also, and yes it’s a living hell. It took me 2 + years to get off 2 mg daily. I tried to rush it and paid a hellacious price! I would say go slow as you need to, and stabilize at every cut, for as long as it takes. Even go back up if you need to. I know what it feels like and even though you want this crap away from you, just be as patient as you possibly can. You can do it. Others have. You’ll get there.
Also, I’m assuming you’ve read the critical parts of “The Ashton Manual”? The Gold Standard. Keep the faith, @amdavis70

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Thanks for the advice. I haven’t read the Ashton Manual but am aware of what she says. I don’t know how to taper less than .125 mg. I think in the manual she recommends titration? Not sure. My Dr only gave me a prescription for the .125 so the last part of my taper is really hard. How can I keep to 10% or less when my daily dose is now .25 mg?
If read I shouldn’t go back up but if I do what do you recommend going back ip to?

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That is a very fast taper. Unfortunately when you finish your last pill it doesn’t mean withdrawal ends. Your body needs time for your gaba a receptors to re-emerge. There is no way to make that go faster. You are right 10% a month if you tolerate it. Good luck with your doctors.

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My Dr has only given me .125 mg to taper and the math just doesn’t work to be at 10% when my daily dose is now so low at .375 mg. His instructions to me were to go down .125 every two weeks. I’ve added a week to taper every 3 weeks but clearly he’s given me bad advice (what else is new) but other than adding weeks I only have the .125 to work with.
I am aware of the fact that this doesn’t end when my taper is done and protracted withdrawal really scares me. Trying to stay positive but it’s not easy. This past week has been really awful and don’t know what to do. That’s why I originally posted what does go slow really mean for me. Thanks for replying. I know I’m not alone in this struggle but lately I feel so out of touch with the world including my friends and family. Horrible way to feel.

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@amdavis70

Thanks for the advice. I haven’t read the Ashton Manual but am aware of what she says. I don’t know how to taper less than .125 mg. I think in the manual she recommends titration? Not sure. My Dr only gave me a prescription for the .125 so the last part of my taper is really hard. How can I keep to 10% or less when my daily dose is now .25 mg?
If read I shouldn’t go back up but if I do what do you recommend going back ip to?

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@amdavis70 Thanks for the reply. I am not sure about the tapering of dosages that small, but believe that a good compounding pharmacy could help with titration solutions. It’s worth a try. And, as far as going back up, I think it’s better than torturing yourself at too low of a dose. Go back to where you were stable and then come down slower/smaller, if possible. Don’t give up! You will get there even though it feels like there’s no way out. Let us know.

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@clutch

@amdavis70 Thanks for the reply. I am not sure about the tapering of dosages that small, but believe that a good compounding pharmacy could help with titration solutions. It’s worth a try. And, as far as going back up, I think it’s better than torturing yourself at too low of a dose. Go back to where you were stable and then come down slower/smaller, if possible. Don’t give up! You will get there even though it feels like there’s no way out. Let us know.

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Part of my problem is I can’t think straight anymore, and have lost touch with who I am or who I used to be. I feel like crying or ending it all when I think about how much of me is gone.
So I don’t want to go back up but the thought of continuing my taper terrifies me.

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@sisyphus

BEFORE any medication use, I ask: Am I taking care of myself in ways nature has intended? From me an Octogenarian.
1- That means: Am I eating a reasonably healthy diet? Yes starting with H2O!
2- Am I physically active enough each day without too long sedentary slots?
3- Do I use my time in intellectually/ emotionally/ spiritually rewarding acts?
Each of these points spans a whole gamut of life but we all come out of our mothers fairly well-equipped to stay the healthful life course.
So I rarely see doctors, nearly no meds, or tests, and sleep well because I am tired physically and mentally by the day's end AND know what Important work next day awaits me: To Live Purposeful Life.
Diseases and disabilities so far have spared me even though I am in among the financially privileged bu I know how to stretch dollar. I buy food on sale and have a wholesome food within $10 a Day.
I hope it helps to some of the queries here. Good Luck, Fellow Travelers.

Jump to this post

Your comments interest and inspire me. I’m in my mid 70s, a retired educator and fellow sufferer. I’ve had sleeping issues for over twenty years, was put on a combination of benzos and baclofen and have been at war with them and myself ever since. Insomnia has been an insatiable beast and has defeated me to the point where I’m just a shell of my former self. I’ve attempted to wean a hundred times over the years but to no avail. My current doc seems unable to understand the process. This past month I’ve taken to giving it another try. But insomnia continues. The worse part is little sleep produces little intellectual curiosity and reading along with research is out of the question. Yesterday I came across this site and am reading the testimonials of my brethren. This is inspiring. Tonight, I’ll continue with my wean and see what tomorrow brings. No guarantees…

REPLY
@sisyphus

BEFORE any medication use, I ask: Am I taking care of myself in ways nature has intended? From me an Octogenarian.
1- That means: Am I eating a reasonably healthy diet? Yes starting with H2O!
2- Am I physically active enough each day without too long sedentary slots?
3- Do I use my time in intellectually/ emotionally/ spiritually rewarding acts?
Each of these points spans a whole gamut of life but we all come out of our mothers fairly well-equipped to stay the healthful life course.
So I rarely see doctors, nearly no meds, or tests, and sleep well because I am tired physically and mentally by the day's end AND know what Important work next day awaits me: To Live Purposeful Life.
Diseases and disabilities so far have spared me even though I am in among the financially privileged bu I know how to stretch dollar. I buy food on sale and have a wholesome food within $10 a Day.
I hope it helps to some of the queries here. Good Luck, Fellow Travelers.

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There's a 'not" missing in the last part of my post above: ...even though I am [NOT] in among the financially privileged...." I suppose everyone guessed it already!

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@historyguy

Your comments interest and inspire me. I’m in my mid 70s, a retired educator and fellow sufferer. I’ve had sleeping issues for over twenty years, was put on a combination of benzos and baclofen and have been at war with them and myself ever since. Insomnia has been an insatiable beast and has defeated me to the point where I’m just a shell of my former self. I’ve attempted to wean a hundred times over the years but to no avail. My current doc seems unable to understand the process. This past month I’ve taken to giving it another try. But insomnia continues. The worse part is little sleep produces little intellectual curiosity and reading along with research is out of the question. Yesterday I came across this site and am reading the testimonials of my brethren. This is inspiring. Tonight, I’ll continue with my wean and see what tomorrow brings. No guarantees…

Jump to this post

From everything I’ve been reading, and it seems like the only thing I’m reading at the present time, there is light at the end of this long, dark tunnel. I don’t know how some of these brave souls found the courage and endurance to see it through and are now normal again. They are what keeps me going. Hang in there. The journey will be worth it when you get your life back and that’s worth fighting for.

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