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Myxofibrosarcoma: What treatments did you have?

Sarcoma | Last Active: Oct 7 12:35pm | Replies (104)
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@4me

Hi
I also have myxofibrosarcoma in right calf.
Took 1 1/2 years to diagnose it.
I've had 2 surgeries and during my 2nd surgery had brachtherapy and 2 months later 6 weeks of radiation.
I agree its a shame that there is so little information and k owledge of sarcoma.

Only 1 % of all cancers are sarcoma and there are over 100 subtypes of sarcoma.
I'm glad you have a good sarcoma team near you.The last 3 weeks of my radiation were tough too I had to have a skin graft after 2nd surgery and you don't want to do that and then have radiation.
My leg was like mush.
But I'm very happy to say it healed and was able to save my skin graft.

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Replies to "Hi I also have myxofibrosarcoma in right calf. Took 1 1/2 years to diagnose it. I've..."
chuck138 | @chuck138 | Jun 8, 2023

I thought when I finished the radiation, that was the hard part. Boy, was I wrong! My leg turned to hot mush as well. It's finally healed overall, but the 2 weeks after radiation were definitely tougher than the actual treatments for me.

I had a follow-up ct on my lungs today. I am a little surprised at how stressed it has made me.

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