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Anybody else have Factor V Leiden?

Blood Cancers & Disorders | Last Active: Apr 19 12:08pm | Replies (43)

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@patrizio

Good evening,
I’m a 58 year old male and I’ve been diagnosed with Factor V Leiden. The doctor put me on a medication called Apixaban 10mg a day (apparently for the rest of my life)
I would like to know if I have to follow a special diet ie food, drink, medication and vitamins that I shouldn’t have.
Any other advice on how to handle this new diagnosis.
Thanks

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Replies to "Good evening, I’m a 58 year old male and I’ve been diagnosed with Factor V Leiden...."

Hi,
I am 56 years old female. I was diagnosed with Factor V Leiden 30 years ago. I inherited it from my Father I was told. When diagnosed with it I saw a Hematogist Specialist who put me on aspirin 100mcg. I haven't looked back. No blood clots at all since I saw the Specialist. I was told to watch my diet and not drink alcohol all of the time. I don't drink anyway. Also told not to play contact sports because of severe bruising. My advise to you if you feel unwell see your GP or Specialist. Also a dietitian is a good idea to be referred to about your diet. I hope that this advice helps you,

Thanks for the reply.

Welcome to Mayo Connect @patrizio and @wend1966! Interesting that you both joined within a few days of each other. I know it can be really disconcerting when we receive a diagnosis and have no idea what to expect going forward. We do have a number of members in the the forum who also are living with Factor V Leiden and have shared their experiences with each other.
Let me introduce you fellow members @piglit @sherohio @susangourdlady @mlemieux @hollyteachet @patientk and others in this support group. Here’s the link:
Anybody else have Factor V Leiden?
https://connect.mayoclinic.org/discussion/anybody-else-have-factor-2-and-factor-v-leiden/

@wend1966, you were diagnosed 30 years ago, which has to feel pretty encouraging for @patrizio! Thank you so much for sharing your experience! Replies like yours makes Connect such a valuable source of support for others.
@patrizio, when were you diagnosed? Were you having any symptoms which led to your diagnosis?

Good evening,
Couple days ago i joined the group under the impression (my doctor infos) that i had Factor V Lieden. This morning i made a trip to the hospital following an episode of pain in my calve. They did an ultrasound and find out that i had a minor superficial blood clot (i had one two years ago same place).Ive been taking Apixaban 10Mg every day and now they want to switch my medication and put me on Warfarin.
Can i have some information on that medication ie safer than Apixaban and what my life is going too look like once i'm on it.
But the funny story of the day is that my doctor made a mistake when he told me that I had Factor V Lieden....
I don't have that disorder but i have Prothrombin gene mutation factor 2.
Can you please also provide me with some information with that disorder and what can i eat and not.
Thanks