Thyroid Issues and POTS

I have hypothyroidism and POTS the doctors have never indicated that one condition was affecting the other

If you don’t mind me asking, are you taking medication for either? There is concern that the treatment for hypothyroidism will worsen the tachycardia or could present other cardiac issues. Have you experienced any of this? To be fair that are not 100% sure I have POTs but structurally my heart is good, so that is why they think it could be. Thank you for your time and for your reply.

I have been taking levothyroxin for 5 years and I developed POTS after getting the modern a vaccines. I was diagnosed with POTS from a cardiologist at the Mayo Clinic last year. So the two health conditions developed independently of each other.

I’m having the same issues now as well. Mine is hyperthyroidism. I go for my Nuc med scan to see if my thyriod modules are cancerous. I know hyperthyroidism can cause rapid heart race, palpitation but this seems much worse. I’m assuming based on symptoms I have POTS as well

@sade96
Have you taken meds for hyperthyroidism? Has anyone gotten a lupus like rash from the meds?

Hello! I have not been diagnosed with POTs but I have many of the symptoms.( It seems to be very difficult to get this diagnosis). However, I do have Hashimotos which causes hypothyroid and I found that taking Levothyroxine makes the POTs symptoms much worse - BUT I do take Liothyronine which is the only thing that has helped my POTs symptoms. I take it along with Low Dose Naltrexone.
The only place I found to prescribe both of these in the correct doses is a hormone clinic.
I am also waiting to get into an electrophysiologist, who my friend has seen. They were able to do outpatient heart surgery (an ablation) which cured her symptoms. Hope you find answers!!

Hi @bschoepp
I have had Graves disease since I was 18, and always on Synthroid. After surgery and covid vaccine, I had a tilt table test and was diagnosed with POTS . Beta blockers made my POTS, so much worse and blacking out several times a day. I did find an Electrophysiology that I am currently working with and am now trying Corlanor, and I have seen a little improvement.
Hope you are doing better!

I have had a low thyroid my whole life, and my sister does and mother did. I do not take meds for it, but find the more pure my diet is, it does better in tests as well as symptoms. For me that means NO junk food, NO or little wheat, NO caffeine. Natural foods, not processed. I just had an episode with my heart a couple of days ago, and had more minor ones about 4 in the last few months. I figured it out. I was eating coffee haagen daz ice cream made in the US. Coffee is different in US than where I live in Costa Rica. Also a bit of dark chocolate. I read years ago that some people are very sensitive to caffeine and unfortunately I am one. And I love chocolate, coffee and coffee ice cream and sweets. But decided 2 days ago to eliminate entirely. My episode of heart arrythmia was scary and had not had one in many many years. Not worth my life.

Do you drink coffee, colas with caffeine or chocolate and too many sweets. If so, eliminate them and I believe you will see great improvement. For me, just cutting down to what I think is very little, still causes me problems. Had an episode after ONE QUARTER cup coffee ice cream and 3 little squares of chocolate.!!!

So vax and meds do not help. Investigate and analyze your diet like Columbo on a rampage. Investigate the side effects of any med they prescribe before buying or taking. Usually the meds are worse than the condition. Processed foods hurt you. Natural ones help your health. The garbage is addictive and takes effort to eliminate but better than being unhealthy.