← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

Discussion
Comment receiving replies
@karukgirl

Oh gosh... she really has a lot going, what a terrible time she's having. And you too. It sounds like you will have a better sense of what's going on next week. It must be so difficult to see her like this. I will be praying for you and her. I know He hears our prayers. Will you give your daughter a hug from me? And tell her I am praying?

Jump to this post


Replies to "Oh gosh... she really has a lot going, what a terrible time she's having. And you..."

Thank you. I am terrified and no one will discuss the possibility if things go wrong. This was my little girl with hopes and dreams. As soon as she found out she has a heart disease, the rocket scientist left. He wondered how he could ever hike again. Neither ever hiked. It shows his true grit. He said my heart is mine and yours is yours, but I still have a duty to live. The divorce with custody of a 5 year old autistic child took everything out of me, until this presented itself. It’s true, with health you have everything. It doesn’t come to heart until it travels your way or to a loved one. Sad thing is, he does the minimal, gets 47% custody, but won’t help his son by babysitting. The kid is traumatized and he thinks he would be helping me. No emotional support for a worried child. Big mess here