I’m not sure if you’ve been to this site or not but there’s some good information on here and hopefully newer than the info you were handed.

Here’s the link for the Leukemia and Lymphoma Society regarding Waldenstrom macroglobulinemia
https://www.lls.org/search?search=WM
There are a number of articles on that page. Remember, you may not be needing any meds for some time, if ever. So please don’t be frighted off by things you read. I had a very aggressive form of leukemia 4 years ago and I am alive and thriving because of the powerful drugs I received. Better living through chemistry is now my motto. ☺️.
From past replies, I see you’ve been able to get quite bit of helpful information from @ejrquast for the Waldenstrom’s Macroglobulinemia Foundation, https://iwmf.com/join-the-iwmf/#
Have you been to that site yet for information and support?