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Smell of rubbing alcohol brings on symptoms
Healthy Living | Last Active: Oct 3, 2023 | Replies (22)Comment receiving replies
I am so glad the Octreotide had that unexpected and positive side effect!
I had to laugh at your 'blackout bingo' reference to your allergy testing! Thank you for the humor; sometimes it helps when things are so comically messed-up to stop and see the comedy in it. Actually, sometimes I feel like I've hit a "jackpot," too-- with my genes.
Now I want to look up the NETS and DIPNECH, just out of curiosity, since I've never heard of them. I feel like it's so difficult to get a diagnosis for those 'rare' conditions partly because it's not humanly possible for physicians to be familiar with all of them and their sometimes wide variety of signs and symptoms. Good for you for finally getting to the bottom of that!
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@scolio
Yes, the 50+ tumors were discovered 12 years before I was diagnosed because it was all so unusual. It wasn't until my breast cancer came back for round two that new doctors finally figured it out. The two cancers are not related though. Long story.
All THOSE genes come from my dad's side of the family. Mom was soooo healthy, yet all three of her kids got the cancer mutations among other issues. Lost my brothers to cancer at 48 and 59. I'm the youngest child, but have made it to 64 so far! Despite all the issues, I'm the lucky one! I never ask 'why me' because I'm still here. I always wonder 'why not me' as in why am I the one still here?
The only thing I ever say 'why me' about is, why would you make me the biggest animal lover on the planet and then make me allergic to all of them? That just doesn't seem right. Well, I can have hypoallergenic dogs -- phew! Poodles and schnauzers were my joy!
I have four identified genetic mutations, two cancer, one neuro and one unknown vascular one. My son had a 50/50 chance of getting each one and testing revealed he has all four plus some of my enzyme deficiencies and allergies. Go figure.
Mom wasn't taking one med at 84 and had perfect labs. A fall and fx femur led to her demise. She often said that in her next life she was going to require any potential suitor to provide the family's medical history before she would date him.