← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@nbs

Four days ago I started on Camzyos. So far I have been impressed with the followup from the the assigned pharmaceutical company with their REM specialist that will be sending me the Camzyos. I also feel fortunate that I have access to Washington Univ. where they have a department just for hypertrophic cardiomyopathy. My present cardiologist had been chairman of that department and now is chairman of the cardiology dept. I have obstructive HCM. I did not see a cardiologist until two years ago as I thought that when I felt debilitated from lack of oxygen and energy while walking, pressure in my chest and burning pain in my neck was due to summer allergies and not a heart issue. The allergist I finally went to listened to my heart and told me to see a cardiologist. I was fortunate that my first cardiologist, who was planning on retiring, was aware that Wash U. was part of the Camzyos original trials and after he had me take many medical tests was confident I would qualify for the drug. It is early days but I have great hope for the success of this drug. We are definitely a small group who have qualified to take this new medication.

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Replies to "Four days ago I started on Camzyos. So far I have been impressed with the followup..."

Hi there @nbs, how wonderful that you have a knowledgeable cardiologist guiding you in this treatment plan for your HOCM. There are more and more folks showing up here on Connect, who are just starting on Camzyos, or have been on it a little while. Everyone is openly sharing their journey to help others, so I'm glad you are here now too. Welcome! It's so classic how you eventually found out you have HOCM. From allergies to HOCM! At least you now know what it is and have an opportunity to try a brand new drug that seems to really help. Keep reading on here, there is a lot of information. You say you are in the early days of starting Camzyos, have you noticed any changes in your breathing or chest/neck pain?