1. < Neuropathy

Nerves all mixed up - ever get in the way and/or painful spikes?

Posted by Martin @mlemieux, Jan 30, 2016

This is probably a weird, wacky, rare occurrence, but I might as well try to explain it...

Anyone have problems with their nerves being displaced from life/health events. Because of this, you get nerve pain? Or get jolts of pain up and down your legs, back and/or side of the abdomen?

Last year I was scheduled to have an "arterial flush" to rid my system of clots throughout, the surgeon couldn't get passed my nervous system since it had been moved due to battered arteries. In fact at one point, the doctor hit a nerve and my leg shot up and kicked him in the face (no control). Weirdest sensation ever.

I get jolts of pain all over every day. Some of them can be so strong, my body jumps from it's position. Some of them are so painful, nothing I can do but hold on.

I guess my question/discussion is: Do you any of you suffer from displaced nerves, what do you take for nerve pain/damage and what procedures have you tried to correct the problem?

Thanks a million!
Martin R. Lemieux
@Martin_Lemieux

Interested in more discussions like this? Go to the Neuropathy Support Group.

Moderator
Lisa Lucier, Moderator | @lisalucier | Feb 20, 2020

Hi, @mlemieux - so sorry that somehow this post of yours has gotten overlooked, but wanted to come back to you and see how you are doing? When you talk about your suffering from displaced nerves, will you share a bit more about what you mean by that?

REPLY
1 reply
margaretob | @margaretob | Feb 20, 2020

GOT THAT RIGHT NOW...ankle and leg,foot and hip left side, bad at night. Got a NEUROLOGIST and he said
Autonomic Diabetic Neuropathy mostly left leg and foot. Gave me GABAPENTIN one in the daytime and two at NIGHT.
Got metanx new drug that is being tested on ANIMALS...rabbits and rats...I take INSULIN 30 mgs at night and 25 in the
a.m. NOTHING HELPS MUCH...tried everything...exercise in a chair , walking, cane...etc..TOMORROW I HAVE AN MRI scheduled to see what can be done...M.

REPLY
margaretob | @margaretob | Feb 20, 2020
In reply to @lisalucier "Hi, @mlemieux - so sorry that somehow this post of yours has gotten overlooked, but wanted..." + (show)
@lisalucier

Hi, @mlemieux - so sorry that somehow this post of yours has gotten overlooked, but wanted to come back to you and see how you are doing? When you talk about your suffering from displaced nerves, will you share a bit more about what you mean by that?

Jump to this post

Neuropathy spreads to nerves in foot, ankle and left leg, very painful. Will have an MRI tomorrow to see what can be done. Have a NEUROLOGIST to tell me and an appointment on the tenth of MARCH.....meantime have GABAPENTIN two at night and one in the a.m. and METANX for a vitamin update. Much pain right now...this is hard....M.

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2 replies
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 20, 2020
In reply to @margaretob "Neuropathy spreads to nerves in foot, ankle and left leg, very painful. Will have an MRI..." + (show)
@margaretob

Neuropathy spreads to nerves in foot, ankle and left leg, very painful. Will have an MRI tomorrow to see what can be done. Have a NEUROLOGIST to tell me and an appointment on the tenth of MARCH.....meantime have GABAPENTIN two at night and one in the a.m. and METANX for a vitamin update. Much pain right now...this is hard....M.

Jump to this post

I wish you good luck. 🍀

REPLY
Moderator
Lisa Lucier, Moderator | @lisalucier | Feb 21, 2020
In reply to @margaretob "Neuropathy spreads to nerves in foot, ankle and left leg, very painful. Will have an MRI..." + (show)
@margaretob

Neuropathy spreads to nerves in foot, ankle and left leg, very painful. Will have an MRI tomorrow to see what can be done. Have a NEUROLOGIST to tell me and an appointment on the tenth of MARCH.....meantime have GABAPENTIN two at night and one in the a.m. and METANX for a vitamin update. Much pain right now...this is hard....M.

Jump to this post

How did your MRI go, @margaretob?

REPLY
1 reply
margaretob | @margaretob | Feb 22, 2020
In reply to @lisalucier "How did your MRI go, @margaretob?" + (show)
@lisalucier

How did your MRI go, @margaretob?

Jump to this post

I learned, and slid in the noisy tube for 22 minutes with my eyes closed. Doctor NOT AVAILABLE until the TENTH OF MARCH. NEUROPATHIC AND VASCULAR EXPERT...
I did find two foods that are ZERO in calories (140 each) GRITS....and Marys SUPER LIME CHILI seed crackers. 140 calories ..neither has ANY SUGAR....Multi vitamin of the B's....
Last night after some MEXICAN FOOD my sugar went to 262...I walked it down to 170 then again around the block two times to 127....ALpha Lipoic acid helps to knock it down faster..
I took that pill and my INSULIN 25mgs. this morning and my metanx and Gabapentin 300 mgs....Every day is a challenge. trying to keep the sugar numbers down with a mostly vegetarian diet...Still have the burning and pain when the sugar goes up..GOT TO KEEP IT DOWN...this morning was 100 after the chair exercises on the net....I use two bottles of water for the weights, it works. I am determined to live without the pain associated with DIABETIC AUTONOMIC PERIPHERAL NEUROPATHY which kills.....thank you for asking...I am 76...how are you?

REPLY
2 replies
margaretob | @margaretob | Feb 22, 2020
In reply to @margaretob "I learned, and slid in the noisy tube for 22 minutes with my eyes closed. Doctor..." + (show)
@margaretob

I learned, and slid in the noisy tube for 22 minutes with my eyes closed. Doctor NOT AVAILABLE until the TENTH OF MARCH. NEUROPATHIC AND VASCULAR EXPERT...
I did find two foods that are ZERO in calories (140 each) GRITS....and Marys SUPER LIME CHILI seed crackers. 140 calories ..neither has ANY SUGAR....Multi vitamin of the B's....
Last night after some MEXICAN FOOD my sugar went to 262...I walked it down to 170 then again around the block two times to 127....ALpha Lipoic acid helps to knock it down faster..
I took that pill and my INSULIN 25mgs. this morning and my metanx and Gabapentin 300 mgs....Every day is a challenge. trying to keep the sugar numbers down with a mostly vegetarian diet...Still have the burning and pain when the sugar goes up..GOT TO KEEP IT DOWN...this morning was 100 after the chair exercises on the net....I use two bottles of water for the weights, it works. I am determined to live without the pain associated with DIABETIC AUTONOMIC PERIPHERAL NEUROPATHY which kills.....thank you for asking...I am 76...how are you?

Jump to this post

Complicated disease, but can be managed with a lot of work...keeps the pain down....Margaretob

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 22, 2020
In reply to @margaretob "I learned, and slid in the noisy tube for 22 minutes with my eyes closed. Doctor..." + (show)
@margaretob

I learned, and slid in the noisy tube for 22 minutes with my eyes closed. Doctor NOT AVAILABLE until the TENTH OF MARCH. NEUROPATHIC AND VASCULAR EXPERT...
I did find two foods that are ZERO in calories (140 each) GRITS....and Marys SUPER LIME CHILI seed crackers. 140 calories ..neither has ANY SUGAR....Multi vitamin of the B's....
Last night after some MEXICAN FOOD my sugar went to 262...I walked it down to 170 then again around the block two times to 127....ALpha Lipoic acid helps to knock it down faster..
I took that pill and my INSULIN 25mgs. this morning and my metanx and Gabapentin 300 mgs....Every day is a challenge. trying to keep the sugar numbers down with a mostly vegetarian diet...Still have the burning and pain when the sugar goes up..GOT TO KEEP IT DOWN...this morning was 100 after the chair exercises on the net....I use two bottles of water for the weights, it works. I am determined to live without the pain associated with DIABETIC AUTONOMIC PERIPHERAL NEUROPATHY which kills.....thank you for asking...I am 76...how are you?

Jump to this post

@margaretob You are doing an amazing job working to lower your blood sugar numbers. Your use of exercise and diet are great!

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