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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 6 days ago | Replies (736)Comment receiving replies
Thank you for sharing that @irishpeaks. I wonder if the odds are similar to HCM, 50/50 that it is passed to another relative.
It sounds like you are doing much better after the ablation. I know that amiodarone has a lot of side effects that are not pleasant. I am not familiar with Sotalol, is it a rhythm regulator?
I cringe for you, knowing you have a defibrillator š®
I can't imagine how frightening it must be to live with one of those. Like walking on eggshells, never knowing when it may go off. I've heard it described as feeling like a mule kicked you. I've been kicked by horses, maybe mule kicks are stronger. They talked about a defibrillator in my case too, but I dodged that thank goodness. I would not like living in fear of the thing firing off when you least expect it.
How long before you know the ablation/Sotalol worked for you?
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From what I understand, Sotalol is a rhythm regulator. It is a safer alternative to Amiodarone from what I understand. I had my ablation on April 11th, and will spend 3 days in the hospital on May 30th to get āloadedā with Sotalol.
To me, this is going to be the indicator of how well things have worked. Along with that aspect, this will be the stage at which Iām most vulnerable to a defibrillation.
As far as the defibrillation itself, it is like getting kicked in the chest and head by a mule at the same time. I developed a case of PTSD after the second of five shocks. Itās been a year and a half since my last one and things have settled down. Iām just really hoping not to reawaken that demon.