Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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terid | @terid | May 13, 2023

Hi, I just found out I have a timy Meningioma tumor from a MRI also and my Doctor said they are almost always benign. I too, am going to get an apointmetnt with a neurologist. My Doctor also said they may just wait and see what happens. Best of wishes!

pixie49247 | @pixie49247 | May 13, 2023

You too!! Let’s keep in touch

terid | @terid | May 14, 2023

In reply to @pixie49247 "You too!! Let’s keep in touch" + (show)

Hi, sound great! Let me know how you're doing?

pixie49247 | @pixie49247 | May 14, 2023

In reply to @terid "Hi, sound great! Let me know how you're doing?" + (show)

Waiting for my neurosurgeon appointment to see what’s next. I have some anxiety but feel lucky this is almost always not cancer. How are you feeling?

terid | @terid | May 14, 2023

In reply to @pixie49247 "Waiting for my neurosurgeon appointment to see what’s next. I have some anxiety but feel lucky..." + (show)

I'm feeling good, but I feel like I'm getting more frequent headaches. I am also have some anxiety but knowing that it's probably not cancer makes me feel more relaxed. Let me know what your neurosurgeon says. Have a good evening!

pixie49247 | @pixie49247 | May 17, 2023

I finally heard from my neurosurgeon. Appointment in 3 weeks. Have you heard from yours?

pixie49247 | @pixie49247 | May 17, 2023

Hopefully your headaches are better.

may04tamtam | @may04tamtam | Jan 27 9:37pm

Yes, I was diagnosed with one in 2019. Unfortunately, the discovery came too late to spare the damage to my optic nerve and vision. It had grown wrapped around my optic nerve sheath, so the doctors wouldn’t even biopsy it, much less perform surgery to remove it. I ended up undergoing 28 daily radiation treatments to kill the tumor. It did not restore my vision, but it is not currently growing. For reference, I was 55 when diagnosed.

terid | @terid | Jan 28 7:22am

In reply to @may04tamtam "Yes, I was diagnosed with one in 2019. Unfortunately, the discovery came too late to spare..." + (show)

Hi, sorry to hear about your vision. My doctors keep telling me that my meningioma is tiny and is taking the wait and see approach. I'm a little nervous about knowing it's there and it could cause problems. I know my vision has changed and have to wear stronger glasses all the time. I guess I'll just wait and keep an eye on it. I also have a pituitary adenoma that I am watching. Glad to hear it is not growing!

meepmufasa | @meepmufasa | Jan 28 11:54pm

I had one in April 2022. I understand every person’s results are different. Benign meningioma was successfully removed. I woke up with drop foot and possibly neuropathy. My sister, an RN, suggested possibly that restraints on arms/legs surgery were not routinely loosened and retightened. For blood flow. I guess I would make that a point to doctor. Be your best advocate.