Thank you Colleen!
I appreciate all your helpful questions! When I met with my cardiologist last week I asked very similar questions, he wants me to try the medicine first but said if with my age it’s too much on me taking medicine and doing the echos and I don’t want to do it the rest of my life I can opt in to surgery still. He says the pros and cons are very similar, so it’s whatever I prefer. Surgery is going to be safer at my age then if I wait and need it at 70, but still even later in life it seems to be pretty safe despite being open heart surgery. It’s all scary and I feel kind of at a loss, but I figured I’d try the medicine and then after giving it a proper go I’ll decide what I prefer long term.
That’s the hard thing with such a new medicine, they don’t have long term studies available so they weren’t able to answer that for me
Yes they have, I was originally going to be seen in the pediatric dorm because most people are usually children or older that know they have it, so I feel like the odd one out with it. But it seems to supposedly be promising to have treatment done at my age so hopefully that holds true
Thank you! I will look over those discussions as well.
My doctor is specialized now with it, I’m being seen at OHSU on the HOCM floor I just transferred! Before my cardiologist knew almost nothing haha.
Thank you for the time you’ve spent on here!