1. < Polymyalgia Rheumatica (PMR)

How common is permanent remission?

Posted by alissahe @alissahe, May 13, 2023

Has there been research done to explore the likelihood of permanent remission? The percentage of people with PMR who have a one time occurrence of PMR?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

mansplainer101 | @mansplainer101 | May 16, 2023
In reply to @johnbishop "I've had 2 occurrences of PMR. The first time it took me 3 and half years..." + (show)
@johnbishop

I've had 2 occurrences of PMR. The first time it took me 3 and half years to taper off of prednisone and the PMR went into remission for 6 years. The second time with PMR, it took me 1 and half years to taper off of prednisone and the PMR went into remission again in 2018. I think lifestyle, diet and exercise play a part in helping to keep PMR in remission. It's just my opinion but I think you always live with the possibility that it will return.

Jump to this post

Bummer. Getting old sucks! Just one damn thing after another, isn't it?

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | May 16, 2023
In reply to @mansplainer101 "Bummer. Getting old sucks! Just one damn thing after another, isn't it?" + (show)
@mansplainer101

Bummer. Getting old sucks! Just one damn thing after another, isn't it?

Jump to this post

Yessiree Bob, getting old can be the pits, especially if you forget and don't buy the pitted prunes 🙃

REPLY
alissahe | @alissahe | May 16, 2023
In reply to @johnbishop "I've had 2 occurrences of PMR. The first time it took me 3 and half years..." + (show)
@johnbishop

I've had 2 occurrences of PMR. The first time it took me 3 and half years to taper off of prednisone and the PMR went into remission for 6 years. The second time with PMR, it took me 1 and half years to taper off of prednisone and the PMR went into remission again in 2018. I think lifestyle, diet and exercise play a part in helping to keep PMR in remission. It's just my opinion but I think you always live with the possibility that it will return.

Jump to this post

Thank you for your response. Can you please elaborate on the lifestyle, diet, and exercise you felt helpful?

REPLY
1 reply
jennywren | @jennywren | May 17, 2023
In reply to @annsheehan "Sorry you feel that way about Facebook bc the support group there is significantly helpful." + (show)
@annsheehan

Sorry you feel that way about Facebook bc the support group there is significantly helpful.

Jump to this post

I fully understand the Social Media side of f/b though. Some good and some
bad!

REPLY
Mentor
John, Volunteer Mentor | @johnbishop | May 17, 2023
In reply to @alissahe "Thank you for your response. Can you please elaborate on the lifestyle, diet, and exercise you..." + (show)
@alissahe

Thank you for your response. Can you please elaborate on the lifestyle, diet, and exercise you felt helpful?

Jump to this post

Prior to my first PMR flareup I was pretty sedentary and didn't actively exercise but did occasionally play golf and do some limited walking. My weight was always an issue and I struggled with it. The prednisone helped me put on another 25 or so pounds and I was already overweight.

The second time my PMR flared up six years after it went into remission I started eating healthier - no more fast foods, eliminating most of the sugar and added daily exercise to my normal routine. My daily exercise consists of 30 to 45 minutes on an exercise bike along with some stretching and exercises with light weights, nothing to strenuous.

Here are a couple of articles you might find helpful:
--- Polymyalgia Rheumatica Diet: Do's and Don'ts: https://www.healthline.com/health/polymyalgia-rheumatica-diet
--- Living with polymyalgia rheumatica: https://www.versusarthritis.org/about-arthritis/conditions/polymyalgia-rheumatica-pmr/#polymyalgia-rheumatica-(pmr)_living-with-polymyalgia-rheumatica

REPLY
Carol in Ontario, Canada | @cajmorrison | May 22, 2023
In reply to @jennywren "Personally speaking, I'd say extremely rare. However, it can happen. So far it has for my..." + (show)
@jennywren

Personally speaking, I'd say extremely rare. However, it can happen. So far it has for my broth-in-law. He's been in remission for approx a year. You will get more help with your question on the PMR forum. Face book.

Jump to this post

l just looked up the pmr forum on facebook, and it averages only 1 post a year, and the most recent post was in 2021. No point, in my opinion, to join. Maybe there is another one l haven't discovered yet?

REPLY
1 reply
jennywren | @jennywren | May 23, 2023
In reply to @cajmorrison "l just looked up the pmr forum on facebook, and it averages only 1 post a..." + (show)
@cajmorrison

l just looked up the pmr forum on facebook, and it averages only 1 post a year, and the most recent post was in 2021. No point, in my opinion, to join. Maybe there is another one l haven't discovered yet?

Jump to this post

You must be on the wrong one as there are posts and many all day long. You have to request to join these groups. Try joining HealthUnlock....a very good forum.

REPLY
1 reply
Carol in Ontario, Canada | @cajmorrison | May 23, 2023
In reply to @jennywren "You must be on the wrong one as there are posts and many all day long...." + (show)
@jennywren

You must be on the wrong one as there are posts and many all day long. You have to request to join these groups. Try joining HealthUnlock....a very good forum.

Jump to this post

thank you, l will hunt it down.

REPLY
View MoreView Less
Please sign in or register to post a reply.