IV infusion for Osteoporosis

Good evening @melissak7 and welcome to Connect. This is a group of folks who believe in sharing with each other to help them resolve their medical conditions. I personally have found the Osteoporosis members very generous with their experiences. You do have to remember that almost everyone is unique with different responses to the same treatments and medications.

What I need from you is a bit more information. Would you please explain what the IV infusion was made of and what results you had, if any? Did the medication work for you in the beginning? Also, do you know the cause of your neck pain? Did you have an injury or were you told that it was the result of Osteoporosis?

I have had quite a bit of experience with neck pain as a result of a fall from my horse that wrenched my neck and left me in a reverse sling above the hospital bed for several days because of a large concussion. It took years, but my orthopedic surgeon finally found the cause in 2013 and I now have titanium clamps that keep my neck in its right place. It does "rattle and roll" once in a while and I do neck stretches every day to keep it flexible. My MFR therapist (myofascial release) sees me twice a week and she starts the session on my neck. That helps a lot.

Was the IV treatment just for your neck or other osteoporosis sites? I'm afraid I need a little more information from you about this condition so that I can be more informed and therefore more helpful. Because pictures often speak louder than words, I am attaching a photo of the repair work on my neck.

May you be free of suffering and the causes of suffering. I look forward to your response.
Chris

I have had infusions for osteoporosis with Evenity and Prolia w/o any neck pain as a result.

Correction.......I get shots for osteoporosis.
I get infusion for T.E.D.

I am a very small woman who has some spine fractures. Is Evenity the best treatment for me?

Evenity have lots of side effects.

Don't they all? Evenity actually grows bone that is why I am thinking of getting this. The others prescriptions actually don't grow the bone only keeps you from losing more bone? I've been researching.

Does anybody use an estrogen patch for osteoporosis?

@1956slk thank you for your findings regarding Evenity. I’m in Canada and will be 60 years old in late June and I’ve just begun my research. I’m a small woman (5’3” and 120 lbs). Approx 6 years ago I had gastric bypass surgery as I had many underlying health issues. Over a 2 year period of time I lost 115 lbs. Along the way, I found out last year that I’ve got osteoporosis. Due to my previous surgery, my stomach is 1/4 the size of a regular stomach so I’m unable to safely take osteoporosis medication in a pill form as it will most definitely cause stomach ulcers and further gastric issues for me. I just don’t have enough stomach acid to properly absorb this type of medicine. I’ve been sent to see an endocrinologist and after many more tests and X-rays she feels I should do well getting Prolia in an IV infusion once a year. My MAJOR concern is that this drug will definitely cause a lot of hair loss AND it can cause my jawbone to splinter in the event I should ever need dental surgery while on this medication. I’m scared to death. I’ve tried the holistic approach, I’ve done acupuncture, exercises and worked with a physical therapist for weight lifting.

My test show I’ve got osteoporosis in my hip and spine. Breaking my hip could cause it to shatter and many who have dealt with this have approx 1-5 years after their fall to live….it’s a death sentence for many.
I don’t know what else I can do that I haven’t already tried and I’ve used a year to see if doing things with diet, exercise, etc could make a difference for me, but sadly my dexa numbers have gone up slightly over the last year.

Any suggestions would be greatly appreciated!

@cathymf2 the problem with Prolia is that it is hard to get off. You have to transition to Reclast or you quickly lose bone density and fracture risk rises a lot. Another issue is that it may reduce the effectiveness of future meds. Many of us start with a bone builder like Evenity, Tymlos or Forteo. I did Tymlos because the dose is adjustable and I am small, so it was helpful to be able to do that.

Resources for you: a video by Dr. Ben Leder on YouTube on Combinations and Sequencing (combining Prolia and Forteo is covered; that was before Tymlos was commonly used). And Keith MCormick's recent book "Great Bones."