Esophageal junction outflow obstruction (EGJOO)

I was recently diagnosed with Esophageal Junction Outflow Obstruction (EGJOO). I was wondering if there was anyone else out there with it.

It's terribly hard for me to eat. I have a bit of breakfast, and a small lunch, and then that's it for the day. Nothing else will 'fit' waiting for everything to go through to my stomach.

I also have esophageal dysmotility, which leaves me with difficulty swallowing, and inhalation of food, pills, and (yuck) stomach acid.

I've also had severe GERD for decades, and at this point, have been prescribed 80mg a day of omeprazole, 40mg a day of famotidine, and 1000mg of alginic acid. Even with all that, I still have to take antacids throughout the day.

I also wonder if anyone else has to take that much omeprazole? I worry about the side effects of the long term use of so much every day, but every gastro I ask about it tells me there's just nothing else I can take. (I have tried all the omeprazole-like meds e.g. pantoprazole etc, as well as Dexilant and Reglan.)

Thanks for reading,
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