Statin discontinued due to neuropathy. What are some alternatives?

Posted by Nazir Khan @nukhan, Jan 19, 2020

I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@marymaurer

Took statins at highest dose for over 20 years. Neuropathy developed slowly beginning with socks under the toes feeling. Weird. Not painful but numb. Dc’d statin about 3 years ago and now take red yeast rice. Perhaps a little better.. not worse. Thank goodness. Statins are only cause I can think of. No other meds or physical problems.

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what is a high dose and what brand?

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@marymaurer

Took statins at highest dose for over 20 years. Neuropathy developed slowly beginning with socks under the toes feeling. Weird. Not painful but numb. Dc’d statin about 3 years ago and now take red yeast rice. Perhaps a little better.. not worse. Thank goodness. Statins are only cause I can think of. No other meds or physical problems.

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Red yeast rice has the same active ingredient as statins. Many people take citrus bergamot instead.

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@marymaurer

thanks. Really appreciate your input. I stopped statins about 3 years ago and now take red yeast rice. It works.. but like with the cbd you have to research to find which brands actually .There’s wide variation in the effectiveness.

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Red yeast rice has the same active ingredient as statins.

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@dlmdinia

Red yeast rice has the same active ingredient as statins. Many people take citrus bergamot instead.

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I know… but different statins can apparently affect people differently.
Have people achieved much success in lowering LDL with citrus bergamot alone?

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@steveny9

Really 40 years on Lipitor? What age did you start and why?

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I started on 40 mg of lipitor when I was 43 and my new doctor listed to the history of heart disease in my mother and older sister. My mother had a heart attack at 62 and again at 64 and had a quadruple bypass heart operation. My doctor knew that Lipitor was a drug to lower cholesterol and he asked me to try 40 mg to see if I could avoid having heart disease. I have no heart diseased that I am aware and I will be 83 in August 2023. I thought I noticed pain from Lipitor when I was in my late 60's and I stopped for a month, but decided Lipitor was not my situation. I further asked my doctor, and he replied that "we all" as we age experience different feelings as we get older. Why he says, all the time "growing old ain't for sissies". The human body as it grows older your mind could be the culprit!

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@elizabethaames

I've been taking Crestor/Rosuvastatin only since Oct '22 for a genetic high (330+) cholesterol risk despite active/regular exercise/lean dietary intake etc and it helped the cholesterol but has negatively impacted my mobility and lifestyle substantially...with pain, twitching, tingling, cramping, electrical type zaps in extremities etc. The prescribing doc just said, "discontinue and see" without providing an alternative (gee thanks) so I feel like a sitting duck...should I discontinue it and risk stroke or continue to put this horrid stuff in my body that's causing me to be a fall risk? Worried about permanent nerve damage and feeling like my foot's asleep constantly too...(driving hazard) Thoughts?

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I have a syndrome called Fibromyalgia that cause muscle cramps pain as well as feelings of pin pricks anywhere on my skins and feeling of electrical impulses. I was first started on Elavil generic name-amitriptyline , then neurotin and now 75mg of Lyrica twice a day. I met some friends that told me they experienced the same but they were on 300 mg twice a day. Again,
we are all different on how we tolerate pain. I use CBD cream of at least 900 mg strength and above. No specific brand, just buy any CBD product and see if I get relief. Volteran helps as well and it is less expensive than CBD on an ounce price. I know what I have and I know what helps me. Hope it may help you and anyone else that reads what I have written.

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@nocinnor4h

Vbf cream is that through your doctor

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Volteran was a prescription but its now over the counter.

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@marymaurer

Took statins at highest dose for over 20 years. Neuropathy developed slowly beginning with socks under the toes feeling. Weird. Not painful but numb. Dc’d statin about 3 years ago and now take red yeast rice. Perhaps a little better.. not worse. Thank goodness. Statins are only cause I can think of. No other meds or physical problems.

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Do you have hypercholesterolemia? That is the only thing that would seem to justify a maximum statin dose. Have you tried some of the newer non statin meds such as repatha? Could be something you would like to discuss with your cardiologist.

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@snagydude

Do you have hypercholesterolemia? That is the only thing that would seem to justify a maximum statin dose. Have you tried some of the newer non statin meds such as repatha? Could be something you would like to discuss with your cardiologist.

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I don’t have hypercholesteremia. discontinued Atorvastatin 40 mg after taking it for 20 plus years because I felt it might be causing the neuropathy. No improvement in neuropathy but not worse.
Began Red yeast rice about two years ago. Cardiologist is fine with results. Not quite 100 ldl but close.

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@greeneagle

I will jump into this conversation. My doc put me on 40mg of Lipitor 40 years ago, as my mother and older sister both had heart attacks in their 60's as well as quad-bypass. I am 82 and started experiencing tingling in my toes, then feet and now lower legs. As it was hard to walk much less do much with all this tingling, I decided to try CBD cream of a supposed strength of al lease 500mg (the FDA does not regulate the mg strength but try a strength that may help) I have been using CBD cream on my toes, feet and lower legs every morning and in the evening if I go out for the evening. Some days, I have total no neuropathy and others a bit of burning but no tingling. My Cholesterol numbers runs under 141. I think I will stop Lipitor for a week or so and see if my neuropathy lessens.I also have fibromyalgia on my upper body and I take 75mg every 12 hours. Hope what I have written helps someone else.

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Yes pls May I have the brand name

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