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Anybody want to talk about Progressive Supranuclear Palsy?
Does anybody have or have anybody close with Progressive Supranuclear Palsy.? How does one navigate life with this?
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Currently just been diagnosed with psp and have just started falling (regularly) over 6 months ago. Nothing else now. Obviously I am upset about the final outcome. I’ve now seen a few people who are stages away from me (those who can’t talk, for instance) and at this moment, I am wondering what I can do for myself.
Thank you for any information.
Ginger Harrison
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2 ReactionsIs anyone familiar with PSP or currently showing symptoms of PSP?I’ve been told by neurologists at Mayo that I probably have Progressive Supernuclear Palsy (PSP). Has anyone had this or know anything about it?
My father has been diagnosed with PSP. There is more information available now than there was when he got diagnosed, but as it is rare, little is out there. Try the CurePSP website (psp.org). They have an upcoming virtual family conference that is free. I am hoping to learn more by attending.
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1 ReactionAnother source of information is the Association for Frontotemporal Degeneration. Here is a link:
https://www.theaftd.org/what-is-ftd/progressive-supranuclear-palsy/
My ex-brother in law was just diagnosed with PSP. I found this terrific website with information https://www.psp.org/
the guidebook is a particularly wonderful resource, as this is such a rare
diagnosis My very close friend's husband had MSA, and it was very hard to find information. Best wishes....v