@deakinoh, Welcome to Connect. And Congratulations on your kidney transplant and your ongoing recovery. I'm happy that you have joined us on Connect as you continue your journey toward your new future!
Weight gain after transplant is something that I and many others struggle with after transplant. I was skin and bones after my transplant (liver and kidney) when all of the excess fluids were back to normal. As odd as it sounds I was told to eat to gain weight at first.
I would like to share this article that was featured in the Connect Transplant Blog The Blogs are articles that are written by the the Transplant staff about topics of interest to Transplant Patients and their Caregivers. I like this reference article because it provides some assurance that it is a common struggle, and it gives some tips for exercise and eating tips.
Deakinoh, It can make a difference whether you are comparing your current weight to your pre transplant 'normal' weight or to your post transplant weight. Your weight can be affected by any excess fluids if your body is still carrying extra fluids. Weight gain can also be a problem for some people who take prednisone.
At my 4 month post transplant surgery visit, I had an appointment with a transplant nutritionist who was able to give me some helpful suggestions about my own personal food preferences. I believe that meeting, gave me a good foundation for a healthy diet and for developing a pattern for making good food choices. Does your transplant center offer any nutrition guidance?
I have an appointment at the end of November and I will certainly ask if there is a transplant nutritionist. I also am starting to lose hair which doesn’t. I’m told I won’t go bald. My decision to have a transplant would not have changed but I wish I knew some of these side effects. I am grateful that I am basically doing very well. Thanks for the information
I have an appointment at the end of November and I will certainly ask if there is a transplant nutritionist. I also am starting to lose hair which doesn’t. I’m told I won’t go bald. My decision to have a transplant would not have changed but I wish I knew some of these side effects. I am grateful that I am basically doing very well. Thanks for the information
I have an appointment at the end of November and I will certainly ask if there is a transplant nutritionist. I also am starting to lose hair which doesn’t. I’m told I won’t go bald. My decision to have a transplant would not have changed but I wish I knew some of these side effects. I am grateful that I am basically doing very well. Thanks for the information
Hi @deakinoh. I'm wondering how you are doing now? I was losing a lot of hair. I used to have very thick hair and lost half when I contracted COVID and then it started to come back when I had the transplant and I lost half of what I had at that time. I started taking Biotin in July, but it didn't help. The new hair that was coming in was really course and blonde (I'm a brunet and have never been blonde). I have been taking BioSil (double the dose recommended though) since about November. It seemed to slow down the amount that I was losing, but still losing more than normal. So last month I cut my hair short (about 8 inches off). In the past month, I noticed less hair loss. This month when I went back to the salon, we noted that my hair is getting thicker and the hair has gone back to the normal texture and color. I wanted to share this with you as a possible solution for you.
I have had my transplanted kidney for 12 1/2 years. In the first few years after transplant I had night time sweats. It was like menopause and my nightgown would be wet. I am happy to say no longer have that problem.
I am a year and a half post liver transplant and still having night sweats. Interestingly, they are often associated with nightmares. Hoping they will resolve with time. No one seems to know what to do about them.
I am a year and a half post liver transplant and still having night sweats. Interestingly, they are often associated with nightmares. Hoping they will resolve with time. No one seems to know what to do about them.
I had awful sweats after my kidney transplant; sweaty feet and hands too. They seem to have subsided after 7 months. It might be related to the meds you are taking.
Hi @ljadawag 😊
Yes! Every night I take a cold shower to bring down my core temperature, turn up the air conditioning and turn on the ceiling fan so I can get a good night sleep. My body temperature definitely is running "menopausal" and I think the immune suppression meds contribute to the heat flashes too. You are not alone!
I am a kidney transplant patient and I take Mycophenolate and Tacrolimis. Are you taking the same meds?
Hi @ljadawag 😊
Yes! Every night I take a cold shower to bring down my core temperature, turn up the air conditioning and turn on the ceiling fan so I can get a good night sleep. My body temperature definitely is running "menopausal" and I think the immune suppression meds contribute to the heat flashes too. You are not alone!
I am a kidney transplant patient and I take Mycophenolate and Tacrolimis. Are you taking the same meds?
Hello !
I saw this post and it made me think. Shortly after my Kidney and Liver transplant 2 years ago i started having night sweats. My clothes would be damp the next morning. I never thought it was linked to meds. I use to be anemic for the most part of my life and it felt nice not getting cold easily but the sweating was not fun. I don;t think i ever questioned the sweats, i thought it was the weight gain after surgery. I am also on tacrolimus and Mycophenolate twice a day.
I too have experienced hot flashes, night sweats and nightmares as well as weird dreams since my liver transplant in 2020. It's comforting to hear other people are experiencing these and it's "not just me" I really appreciate these groups and have discovered so much support here. Thank you to everyone 🥰
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I have an appointment at the end of November and I will certainly ask if there is a transplant nutritionist. I also am starting to lose hair which doesn’t. I’m told I won’t go bald. My decision to have a transplant would not have changed but I wish I knew some of these side effects. I am grateful that I am basically doing very well. Thanks for the information
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Hug
1 Reaction@deakinoh, you may be interested in this related discussion about transplant and hair loss:
- Hair loss after transplant, probably Tacrolimus: Anyone change meds? https://connect.mayoclinic.org/discussion/hair-loss-after-transplant-probably-tacronlimis/
Hi @deakinoh. I'm wondering how you are doing now? I was losing a lot of hair. I used to have very thick hair and lost half when I contracted COVID and then it started to come back when I had the transplant and I lost half of what I had at that time. I started taking Biotin in July, but it didn't help. The new hair that was coming in was really course and blonde (I'm a brunet and have never been blonde). I have been taking BioSil (double the dose recommended though) since about November. It seemed to slow down the amount that I was losing, but still losing more than normal. So last month I cut my hair short (about 8 inches off). In the past month, I noticed less hair loss. This month when I went back to the salon, we noted that my hair is getting thicker and the hair has gone back to the normal texture and color. I wanted to share this with you as a possible solution for you.
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Like -
Helpful -
Hug
2 ReactionsI have had my transplanted kidney for 12 1/2 years. In the first few years after transplant I had night time sweats. It was like menopause and my nightgown would be wet. I am happy to say no longer have that problem.
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Helpful -
Hug
1 ReactionI am a year and a half post liver transplant and still having night sweats. Interestingly, they are often associated with nightmares. Hoping they will resolve with time. No one seems to know what to do about them.
I had awful sweats after my kidney transplant; sweaty feet and hands too. They seem to have subsided after 7 months. It might be related to the meds you are taking.
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Like -
Helpful -
Hug
1 ReactionHi @ljadawag 😊
Yes! Every night I take a cold shower to bring down my core temperature, turn up the air conditioning and turn on the ceiling fan so I can get a good night sleep. My body temperature definitely is running "menopausal" and I think the immune suppression meds contribute to the heat flashes too. You are not alone!
I am a kidney transplant patient and I take Mycophenolate and Tacrolimis. Are you taking the same meds?
On Tacrolimus only. Hot flashes are not an issue, neither hot temperature, as I have cold sweats.
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2 ReactionsHello !
I saw this post and it made me think. Shortly after my Kidney and Liver transplant 2 years ago i started having night sweats. My clothes would be damp the next morning. I never thought it was linked to meds. I use to be anemic for the most part of my life and it felt nice not getting cold easily but the sweating was not fun. I don;t think i ever questioned the sweats, i thought it was the weight gain after surgery. I am also on tacrolimus and Mycophenolate twice a day.
Good morning
I too have experienced hot flashes, night sweats and nightmares as well as weird dreams since my liver transplant in 2020. It's comforting to hear other people are experiencing these and it's "not just me" I really appreciate these groups and have discovered so much support here. Thank you to everyone 🥰
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Like -
Helpful -
Hug
1 Reaction