Hello @stefanielyn Do you have any option for a second opinion where you live? Is there a larger teaching hospital near you or a physician who specializes in integrative or functional medicine?

Greetings, it’s so frustrating to feel as though your medical needs aren’t being met. I had to look up Dysautonomia because that is something I know nothing about. And after reading about it I still only have a vague understanding of the range of symptoms but it would be awful to have those symptoms.
Lots of us who post here have struggled to find the right medical provider. It sounds as though you have not found yours yet. I agree with Lori wholeheartedly about a second opinion.
There are questions that a lot of us have about symptoms that one can attribute to MGUS, but most people don’t even know that they have it and it is discovered when they are looking for something else.
I’m not a physician, of course, but it may be a separate issue from your Dysautonomia, which does not mean that the MGUS is insignificant. It will need to be monitored by a hematologist/oncologist who is an expert in the treatment of Multiple Myeloma. We all hope MGUS never progresses to that, but we must be diligent.
Perhaps your PCP can refer you to the proper specialist for a second opinion if you are not receiving the care you need. I wholeheartedly endorse Lori’s recommendation that you seek out a provider who knows how to treat you. I receive my care at a CANCER treatment center in my community. If I had any misgivings about the efficacy of my treatment I would cast a broader net. Health insurance barriers can sometimes be worked around if there is medical necessity. It’s a disgrace that we have to make these health decisions based on health insurance parameters.
Let us know how this goes for you.
Patty