A Change Has Come
Hello, I am new to this group, not having posted anything on it before(at least I don't think I have).
I presently take care of my 84 year old friend/neighbor who now has dementia and the associated memory loss. I attend to her needs every evening, usually staying about 4 hours. Making her dinner, taking care of her cat, cleaning and things of that nature. My friend, who I will call Joyce, is very stubborn, a picky eater among other things. I do the best I can. However, I have my own health issues which are considerable, and sometimes I do not want to spend every evening with Joyce. I am finding that I am losing my patience with her more frequently, and often leave early because I am afraid I will say something that I will regret, even if she does not remember the next day. She has no one else willing to help her as much as I do, and with my health being the way that it is presently, I am not sure how much longer I can continue to attend to her needs. Joyce has been incredibly kind and generous to me, thus my unfailing loyalty to her. Having said this, she is beginning to get abusive towards me, saying unkind and insensitive things, ordering me around and things of that nature. It seems as though what I am doing is just not "good enough."
Getting her interested in dinner is difficult at best, because all she can think of to eat is baked potatoes, so that is what I have been preparing for her. I figure, if this is what she wants, then this is what she will have for dinner. I have tried contacting the person who has power of attorney over Joyce, but my inquiries are ignored. Lately, I feel like I need permission to take a break from seeing Joyce everyday because I have my own health issues to deal with, and which she is unable to understand. My health issues are serious, but I will not bore you with them here. Suffice to say however, that I am not in as good of shape as I was ten years ago when I first met Joyce. I am also grieving somewhat over the loss of our "friendship" as we no longer do those fun things that we did just a year or so ago. I dare say that she has no memory of the fun we had before now. What happens when you start to feel "care- giver burnout" and how do you deal with it?
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I appreciate your loyalty to your friend but it appears that the ones in charge have abdicated their responsibility to this client. as they know you are there to take care of her. I would be of mind to report this to another attorney as this one is clearly not doing her job. There are rules for POA's to follow and seems like this one is not doing her job. Very sad and sorry you are in this situation and be sure to take care of yourself.
Wow! You have written my story. I too was helping a sick friend, and it was draining me. I had to back away due to my own health and my family responsibilities. I had peace from the Lord that I did the right thing. Guess what? Folks started stepping up to help her and it has been wonderful for her and me. God is so good!
Contact her primary care doctor. HIPAA laws will prevent them from communicating to you but there is nothing stopping you from speaking with them and reporting the problem. They should have her emergency contact person and/or her health care proxy. Most offices have a care coordinator. Insist that you speak with them. They can surely refer you to someone who can offer a path forward for your friend. Failing that if you live in a small supportive town, contact the town welfare officer or senior services for the town or county. You are good friend to get her the help that she needs.