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Waldenstrom Macroglobulinemia with MYD88-wild type
Blood Cancers & Disorders | Last Active: May 30, 2023 | Replies (11)Comment receiving replies
Thank you Colleen for checking in on us. My daughter's treatment plans haven't changed. She sees her Dr only once a month and I wonder if he even reads her numbers after her weekly blood test. I really don't like to have those feelings toward him, but I do. She is reading all about WM and tries to get her concerns and questions in each week. She feels good and goes on with her life, but her kidney and blood numbers tell a different story. Today is another visit to doctors. I will be praying for some answers. Thank you!
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Just an update on my Dr's last visit. I think I sounded off about the Dr's to fast, and I want to say I am sorry. As a mother you want the results to come in quick and sooner then later. As of 5.17 her last visit, the Dr's said he felt good about her progress. Kidney Dr, felt somewhat the same and adjusted her meds. 3 chemo drugs will continue. WM so far hasn't broke my daughter. She continues to eat healthy and exercises. I will always be here doing research and she is reaching out to support grps. Bless you all. Never give up!