Severe numbness in hands from neuropathy

To as143 Thank you for your reply. It is nice to know I am not alone. People see my hands and my using them and they think they are perfectly fine. They are so far from this. I have trouble picking up my pills with them so I have to improvise when doing so many things. For example, when taking my pills, especially the tiny ones. I simply lick the top of the finger next to the thumb to pick them up. I would like to get an MRI of my back but I have a pacemaker so I can’t get it done. Please keep in touch and tell me if any of the things you are doing makes a difference. I hope you find the answer to this problem. Have a great week and all the best.

I have small fiber that is messing with my life. My hands up the arm to shoulders are numb. My hands get bad. My doctor has me getting an IVIG infusion 2 days a month. Very expensive but medicare part B pays and my secondary pays. I pay nothing. It helps me calm all the burning and numbing. My hands are hypersensitive always. So the infusion gives me a break for about 3 1/2 weeks. I took a medicine vacation for a couple months and I did see how it is helping me. I got the 2 infusions last Thursday and Friday. I am having a calming down on pain in my hands, arms, legs and feet. I embrace it even if for 3 1/2 weeks. I also have crone's disease which I get entyvia infusion.

I have neuropathy in both my hands. Have yet to find something to help. Aloha from Kauai, Hawaii

Hello, I am 10 weeks post op now. They ended up doing four lemonectomies and fusion in my cervical spine. Tremendous relief of pressure. I have zero pain. My myelopathy is almost gone and I am working on it in physical therapy. I went from wheelchair to walking in 10 weeks. Still using a rollator but I'm up to 1800 ft a day. I'm also able to go about 100 ft without any assistance at all. This is a miracle, given I was told by two surgeons I would never walk again. Ha! As for my hands, I have been doing occupational therapy and I'm slowly regaining dexterity. I'm able to button shirts for example. The pain and numbness and tingling are reduced, but still present to a degree. They put me on cymbalta for my hands. It's been about 3 days. Hope it works. Hope you find comfort as well.

That’s great news!!!

Does anyone have it in their hands? The burning , searing pain is un bearable some days, but all the information I find is about it in the feet. I get so frustrated that somedays it brings me to tears just trying to do something simple like type this post...I need to get treatment soon because my mental functions are starting to get uncontrollable. Can anyone steer me in the right direction?? thank you

Good evening @hwn67, welcome to Connect. I share your concern about the burning pain in your hands. Do you also have what I call "Tingle, Tangles" the irritating numbness that accompanies the burning pain? Please share with me what you mean by uncontrollable mental functions. Does that include memory failure or other cognitive issues? Are you taking any medications? Prescribed or OTC? When you speak about treatment, what are you hoping to find? Exercises, medications, appliances?

A more explicit story about your situation would be so helpful. Have you been diagnosed with a form of neuropathy? or small fiber neuropathy?

I am hoping to get to know you and your situation a little better so that I can begin to steer you as you requested.

May you be free of suffering and the causes of suffering.
Chris

I have it in my hands. Since I can’t feel them I am constantly cutting myself when I cook. My husband has had to take me to the emergency room three times in the last month. I will look down and my hands are bleeding. The other problem I have is sharp nerve pain in my hands that curl them up. My husband has to pull my fingers back into place and message it. It truly hurts like the dickens I just sit and cry

The worst part is handling hot or cold things. I have to use oven mitts to take microwave popcorn out. My finger tips are much more painful and annoying than my toes. I have a piece of rubber over my on/off switch of my reading lamp because it hurts to turn it off and on. I don’t know what to do?

My hands are numb, tingling and have pain. They aren’t as bad as yours. I find myself being very careful when using a knife or any sharp object in my hands. I have burned myself twice on the toaster open flipping things with my fingers instead of pulling the tray all the way out. I didn’t feel it burning until it was too late. I’m more careful now. I have used cold packs on my hands when the pain and tingling gets really bad. I am starting to exercise my hands and I believe that is going to help. Maybe you can try excepting your hands and that may help. Good luck to you. Big hugs.