Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

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Thanku<br />

Hi @lucci50 I hope things went well today. I'm sure you're exhausted. Sleep well. I look forward to hearing from you.

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Hi Colleen, thanks for being concerned. I decided to make it easier on everyone to reschedule after the holidays are over with...might be better for the doctors and family as well. Thanks Colleen. I'll keep in touch.Ralph<br />

I get that. I hope you're having a peaceful holiday. Talk soon.

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thank-you hope you are too...best wishes for a great new year!!! <br />

Hi @lucci50. Checking in. How are you doing?

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Hi...doing ok sandostatin seems to be working. i decided to try cleveland clinic in ohio because they are closer to home in michigan to see what they have to offer. but am keeping mayo clinic in mind. thanks for keeping in touch and caring!!! <br />
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ralph <br />

Hi Ralph,
We use a list of criteria when choosing where to get treatment. Location and proximity are important factors.

How long is your treatment plan? Are you managing the side effects okay?

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So far no side effects...i do not know how long I can be on sandostatin. The claim from the oncologist is that patients have been in it for years...although I do not know how true that is.<br />

I go to the Mayo Clinic 2-4 times a year for followup. I also have carcinoid tumors in my liver and lymph nodes. All they do at Rochester is "watch" me. At home I get a Sandostatin injection monthly but that is the only treatment I get. I understand chemo doesn't work on this type of cancer.