Gastritis, Esophagitis, GERD , small Hiatal hernia , diverticulosis
I am suffering 7 years with chronic digestive disorders , that take me out every day and night . I have Chronic Gastritis, Esophagitis, Class B GERD , small Hiatal hernia , diverticulosis. The worse thing is , I deep wet beach what tastes like sewer water 2000-3000 x a day/ night . My gut can’t handle any kind of food . It just constantly churns and is so loud , non stop . I live on Ultra Pepto . I’ve tried everything under the sun , RX wise , holistic wise , diet and elimination wise . Had so many tests done ✅. Even did acupuncture and 3 sessions of hypnotherapy. 6 Gastro Drs , in 2 states . I’m not celiac and no h pylori . I Eat small and healthy when I can eat . No fast food , no caffeine , low sugar ( just fruit) low dairy . Tried Keto and Gluten free . I’m on waitlist for Mayo Clinic in Jacksonville 6 weeks now . I’m a medical mystery and it’s now getting to me emotionally. I can’t lead a normal life . So much I want to do and I’m always sick . No Dr. has helped yet . I pray daily for relief of symptoms. Even for a day or two of relief. I’m desperately seeking and tried everything they make for gut health on Amazon. Today I will start on antidepressant . I’m sick if I eat or don’t eat and have empty stomach. We rarely go out to lunch and never to dinner . Just cook at Home . My poor body is getting weary of this . 7 years taken away and counting .
Thanks, Rosemary
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I’m sorry or I understand the hell GI problems are, As for me I don’t want sympathy, just understanding. My traveling days are over, I’m only 58. Just making it to work and getting through it is hard. I would gladly give up 10 years of my life if I could retire. There is really only one way the pain will end for me,will continue to fight as long as I can, my elderly parents depend on me so that keeps me going
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2 ReactionsI highly recommend seeking out a functional medicine doctor since you all have gone through the medical system that isn’t giving you answers or helping. I had digestive issues and had 3 endoscopies over 7 years and always put on a prescription that helped. But once I was off them, symptoms returned. At my last endoscopy, the GI doctor told me to never take the med I was on again. I had been put in a Proton Pump Inhibitor or PPI and the cells in my gut were hypertrophic (very enlarged).
I turned to functional medicine that treats the cause. I was tested for SIBO, SIFO, yeast, mold and parasites. I had everything except parasites. You can search for a functional medicine doctor by city and state at ifm.org. Seek one out that specializes in digestive disorders and preferably also has a nutritionist on staff. I’ve been with mine for two years and I’m recovering well, feeling normal. Stress also needs to be addressed but not with antidepressants. Seek out a good mediation app that helps you with breath work and teaches how to regulate yourself when you start feeling stressed. Stress is a huge gut disruptor. If you haven’t read anything about the brain and gut connection, Google it and learn about how our thoughts/stress affect the gut.
I wish you all the best in your journey and hope you find relief.
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6 ReactionsBeen seeing a FM Dr. Last 5 months . Did extensive bloodwork/ stool testing ( 2 diff types ), urine …
Tried two diff meds ( no more PPI’s ) .. not for years. I only tried a few for a few months . They aren’t good for you and made for short term use only .
So I’ve done ✅ all that , I went on keto diet at her suggestion.
That did not help at all .
I’ve run the spectrum.. still they can’t help me . I’m actually a medical mystery.
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3 ReactionsI’m praying for you too …. We are in a horrible place in this life and having people understand it is so key . Most are sick of hearing about it , so I just don’t talk on phone anymore to anyone because I feel like I don’t have anything good to say . I just ask them how they are if I do .
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7 ReactionsYou may need to find another functional medicine doctor that knows how to treat and not recommend a specific diet. You are unique and your gut lining and microbiome need specific supplements to build back up to rid you of whatever you have been diagnosed with. It took me three tries before I found the right functional medicine doctor. And the nutritionist I worked with had my results and guided me with what foods I needed to eliminate for a period of time and what kinds of food are good for the gut - examples: fermented foods (pickles in the refrigerated section of the market, kefir, sauerkraut), omitting fruits high in sugar (bananas, oranges, apples) and consume berries of all kinds, concentrate on organic sad much as possible, use grass fed meats, dairy products, wild caught food. Over time, food in the US has been inundated with too many chemicals. You need to also eat as cleanly as possible. Read labels - I do all the time. I get an almond butter that’s just almonds, no added sugars or stabilizers or added preservatives. It’s more complicated than just going on some diet.
Hope this is helpful.
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3 ReactionsI can’t imagine 10 years feeling like you have😔 I have been sick everyday for the past 16 months with never a relief from feeling horrible. I have all the symptoms you do. Have been to 6 GI doctors, 2 ENT, 2 surgeons. 4 endoscopies, Manometry, the worst, scans, ultrasounds, biopsies, gastric emptying. All this in the past year. The last scope was done a month ago at UCLA by an interventional endoscopic surgeon. Did an EUS, endoflip, wireguided dilation, previous 3 dilations have been balloon, and he was checking to see if I have Achalasia. Now I will start taking a low dose, 10ml of an antidepressant, Nortriptyline. Hoping it will help with the nerves in the esophagus and stomach. I’m trying to keep hopefully but it is difficult.
Can’t eat hardly anything which makes it difficult to gain any weight. Hope you can enjoy your vacation but I understand with feeling so sick and fatigued, it’s hard to even do simple things. You are right no one wants to hear about it after this long. They just don’t understand how it feels to have this everyday.
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6 ReactionsRidiculous after all those intense tests we have done ☑️. The only solution they gave you in low dose anti depressant.
It’s a nightmare that we can’t wake up from .
I’ll keep you in prayer 🙏. I’m just as sick here on vacation unfortunately.
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2 ReactionsHello I have been suffering with stomach pain, large intestine pain, colon pain, diverticulosis and mild diverticulitis, sensitive esophagus, plus had a fall to head and now have a brain lesion and trigeminal neuralgia. The drs can’t figure out why I have pain all the time before and after I eat. I also always feel like I can’t push out still but I’m not constipated. I understand how you feel. Last 3 years I feel sick everyday with pain. Meds don’t help. I can’t taste food to much. Prayer and faith in God is what helps me. I hope they can figure out your issues. DM
I have pain too. My pain is not constant. I went to the emergency room for stomach pain about two weeks ago. They
sent me home with pain pills.
I saw this interesting article that I thought I would share. I have not been diagnosed with IBS but do have digestive issues and was thinking this might be really helpful.
--- Gas-sensing capsule to help people with gut disorders: https://www.labonline.com.au/content/life-scientist/news/gas-sensing-capsule-to-help-people-with-gut-disorders-482534357