Does anyone else have word finding issues...

Posted by tookie @tookie, May 4, 2023

Hello. New on deck. My 2nd Covid in 08/2021 is where I seemed to have gained my soon to be Post Covid issues and like you... thetevare many. Question: Do any of you folks have or have had issues with word finding/retrieval? Its become so much part of my day to day life. Do you have anything that has helped you? TIA

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Hi @tookie. Hopefully you have healthcare system that can refer you to Speech Therapist who is trained to help with this very frustrating issue. I have been doing their suggested crosswords, sudoku, word search, puzzles etc, and after many months of building up time slowly from about 5 min a day, I can find those pesky words easier. Hope this helped🌈

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Hi Thank you . Yes, my PCS nurse has suggested the games and to use paper instead of my phone. It doesn't seen to help... yet. A speech therapist has not been offered as of now.

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I went through that with Covid last year. It was embarrassing. I had to write things down. The words would not come when I was talking, so I was just be quiet. It has gotten better and I am almost back to 100%. It takes time. God Bless You!

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Yeah, same here. I agree with above, & I'll add that I've noticed it's definitely worse when I'm tired or stressed. Like all the symptoms, lots of rest & pacing myself as to when & how much activity I use when & how is sooo essential.

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Yes, I’m thankful not to have brain fog. However, I have occasionally had difficulty with word retrieval. I’ll know the word but can’t always pull it out in conversation. I have found myself saying, “I can’t think of the word right now.” Often, my daughter will suggest it cause I may have shared similar information prior to that using the word. I’m trying not to get stressed about it, since I am 71, I’m thankful I didn’t get the original strain of Covid, which attacked the lungs and killed so many wonderful people. I made it all the way through to June of 2022 before my husband and I both got our first round of Covid, a day apart from each other. We have no idea here we got it from.

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Yes. It was really bad for the first year. I’ve seen improvement in last few months, but it still pops up regularly.

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word finding was the first thing I noticed ~ a month after infection. Who knew this could happen in 2020? As a frontline ER nurse I can tell you no one knew at that time. It was like my new stroke patients with expressive aphasia-knowing what you want to say but not getting the right words out. It wasn't until 4 months later when I was in Pulmonary Rehab that I met another patient who, by chance, mentioned the same thing. Get speech therapy. PT/OT/Speech have become the standard for long hauler care. I went back to a paper calendar/planner and do a Sudoku puzzle every morning for 'brain exercise'. This has made a huge difference in managing the symptom.

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@pat814

Yes, I’m thankful not to have brain fog. However, I have occasionally had difficulty with word retrieval. I’ll know the word but can’t always pull it out in conversation. I have found myself saying, “I can’t think of the word right now.” Often, my daughter will suggest it cause I may have shared similar information prior to that using the word. I’m trying not to get stressed about it, since I am 71, I’m thankful I didn’t get the original strain of Covid, which attacked the lungs and killed so many wonderful people. I made it all the way through to June of 2022 before my husband and I both got our first round of Covid, a day apart from each other. We have no idea here we got it from.

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Absolutely! I got to a point that people I did not know I would not engage in a conversation. I hope this helps... I was a year in April that I have been dealing with many long Covid issues. I am now feeling better, I was at ER six times, hospitalized twice. I rarely am lost for words. My husband and I used to call it " fill in the blanks" I could not find the word I was looking for in conversation, he would fill in the lost word for me. That's the only way I could get through without being nervous when I was speaking to people. Hang in there. I did not think I'd ever see the day where I'd be back on the tennis courts talking to people having fun again. I'm there! Just keep telling yourself that you will not accept this as a way of life. I told myself that over and over again. I believe thoughts become things. I kept convincing myself that I was getting better and somehow miraculously I am doing so much better almost 100% back to myself. I was a complete mess trust me. I hope everything gets better for you. I believe it will.🫂

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@pat814

Yes, I’m thankful not to have brain fog. However, I have occasionally had difficulty with word retrieval. I’ll know the word but can’t always pull it out in conversation. I have found myself saying, “I can’t think of the word right now.” Often, my daughter will suggest it cause I may have shared similar information prior to that using the word. I’m trying not to get stressed about it, since I am 71, I’m thankful I didn’t get the original strain of Covid, which attacked the lungs and killed so many wonderful people. I made it all the way through to June of 2022 before my husband and I both got our first round of Covid, a day apart from each other. We have no idea here we got it from.

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Yes, me too...in my 70's and memory comes and goes. Lately it's a little better. It's so frustrating! At least I feel better energy wise. Wish my post nasal drip would go away, though!

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@cindelee617

Absolutely! I got to a point that people I did not know I would not engage in a conversation. I hope this helps... I was a year in April that I have been dealing with many long Covid issues. I am now feeling better, I was at ER six times, hospitalized twice. I rarely am lost for words. My husband and I used to call it " fill in the blanks" I could not find the word I was looking for in conversation, he would fill in the lost word for me. That's the only way I could get through without being nervous when I was speaking to people. Hang in there. I did not think I'd ever see the day where I'd be back on the tennis courts talking to people having fun again. I'm there! Just keep telling yourself that you will not accept this as a way of life. I told myself that over and over again. I believe thoughts become things. I kept convincing myself that I was getting better and somehow miraculously I am doing so much better almost 100% back to myself. I was a complete mess trust me. I hope everything gets better for you. I believe it will.🫂

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Okay, that is hopeful. It almost been a year, but I am pretty functional. The worst was finding out last fall that I had thymoma cancer. The surgery was a total success. I am betting I will and thinking/feeling that I will get better. I, too, believe in how you think.
Thank you for sharing.

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