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I feel like I'm dying
i am a healthy (I thought) 43 year old female. 2 weeks ago I was at work. Stood up. Got this pulled muscle sensation in my back around my bra strap area. I then proceeded to have chest pain, shortness of breath, flushed, sensation of hot liquid seeping out into my chest, dizziness, and numb and tingly all over my body. I felt like I was gonna pass out or die. I was rushed to the ER. After several tests, and an overnight stay, they discharged me the next day with Synthroid (thyroid just a tad low) and Flexeril for my back pain. I still had the shortness of breath. But they assured me my heart and lungs were fine. Did not do any x-rays or anything for my back. The next day I was pretty much laid out at home due to the flexeril. The following day, I decided to go back to work. Got up, took a shower, then I started having all the same symptoms as before. I had my son take me to the ER again. They did several tests, said my heart and lungs were fine. The doctor diagnosed me with GERD, and sent me home with Prilosec. I took Prilosec for 4 days, then my PCP had me try Protonix, which by the way, both of these gave me horrible side effects (confusion, delirium-hallucinations) and were not helping my stomach pain and nausea. So, she started me on Zantac, which worked wonders the first couple of days, but seems to have worn off now too. Also, after numerous testing, doctor said my Vitamin D was low, was 11, and should be between 30-80. So I started taking Vitamin D3--400 units. 2 weeks later, I have been to the ER three times, had an endoscopy just yesterday (doctor said everything looked fine, but sending off stomach sample for biopsy). Still taking Zantac, and Vitamin D. Trying to eat more foods rich in Vitamin D and calcium. I continue to have nausea, stomach pains, body very weak, losing weight, diarrhea, dizziness, flushed and feel like passing out. I can't sleep, and feel very dehydrated. Every morning I feel like I'm dying with these symptoms. It feels as though it hurts from deep inside my muscles or bones, even my joints in my fingers and elbows hurt. Closer to noon, I feel a little better, try to eat a little something, then it starts all over around 9 or 10 in the evening, and keeping me up all night. I WAS TOTALLY FINE UNTIL 2 WEEKS AGO, THEN ALL THIS STARTED HAPPENING. CAN SOMEONE HELP ME PLEASE? I DON'T KNOW WHAT ELSE TO DO. I FEEL LIKE I'M JUST GONNA SHRIVEL UP AND DIE.
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Sounds to me like an auto immune manifestation..Look up polymyagia rheumatica. I wonder if medical people are looking at the correct lab values?
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3 Reactionshave you been rsted for lupus? My daughter has all same problems and had lupus and MGUS...have you been tested for thst??? Also may be something. nee in your house???
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1 Reactionagree... auto immune
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1 ReactionI am also going to suggest, checking your diet, perhaps a food diary? I'm walking out on a limb here, but wondering about Celiacs, undiagnosed, try cutting out gluten/wheat, for one week...? It took me a long time to learn what I can and can't eat safely...but I also found that the GI is very complex, and it's not always just one thing, wish it was, but the interplay, sometimes more than one thing, it's like a mobile, or an orchestra, one or two things off key or out of time and it turns into heavy metal music, and goes south from there!
and start drinking more water, first thing in the morning, along with the D3 and the electrolytes...caution on the electrolytes, and the D3, start slow, small doses, too much can flip the body into the opposite direction...it's all about balance, and remember, you are loved, you are okay, and sometimes we change as we age, and then we have to adjust to those changes, our lifestyle.
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1 Reactionslowly, very slowly, a light sprinkle in a glass, metamucil, "microdose" and be gentle with your own self, if you can. It's rough and folks just don't "get it" until you've had your own GI problems...
What type of insurance coverage do you have? Because you awful situation seems to be triggered around tests and prescriptions arising out of Emergency hospital visits. Which is NOT the right way to approach your serious symptoms and underlying illness.
Have you been tested for EPI?
Exocrine pancreatic insufficiency?
It can exhibit many confusing symptoms and is often misdiagnosed. It takes a specific test. It can’t hurt to insist on the test and even if it’s negative at least it could rule it out as a possibility. I as misdiagnosed for 30+ years. Now with medication my entire life has changed for the better. 🫶🏽
I would suggest celiacs, and some sort of a later onset of some sort of allergy or immune reaction to something in your diet, possibly gluten, wheat, maybe lactose/milk, but something has shifted, mine happened at 67 years of age, right after a surgey for a hiatus, nissen fundo, then a spigelian hernia, no idea what happened, but it all did, and that got missed, till I got the blood test, and changed my diet all the way around 180 degrees and got much better.
and months of misery, from the spigelian hernia, missed, but also my celiacs, now much better just with diet changes