My PSA has been, for the last 4 months, .01. I think that it was this low due to ADT and Erleada, but I did have RP 10 months ago. My last ADT and Erleada medication was 4 months ago. The androgen receptor inhibitor medications ( such as Erleada ) has been a big help to many here.
I was on Eligard for three and a half years. Side effects were major but the benefits are tremendous. Keep taking it because if you respond, you may do pretty well. I took it with Xtandi for 26 of those months. Make sure to take vitamin D and calcium and a baseline bone density. Osteoporosis is possible if you are on ADT. Best to you.
Great to hear, I would like to stay on ADT as long as possible while avoiding radiation. My PSA and testosterone are undetectable. My cancer is regional and at this point can't be seen on any scans, that includes PSMA. My RAD therapist still wants to radiate.
Great to hear, I would like to stay on ADT as long as possible while avoiding radiation. My PSA and testosterone are undetectable. My cancer is regional and at this point can't be seen on any scans, that includes PSMA. My RAD therapist still wants to radiate.
That is great. If the PSMA is negative is quite reassuring. I got radiation because I had three positive lymph nodes in pelvic region. They were gone after the 20th session. Glad your PSA is undetectable. Being on ADT for too long is not very good. Risk of heart issues, osteoporosis, high blood sugars. It’s great treatment but it has major side-effects too. Stay well.
I was diagnosed in November 2022 with Stage 4 with metastasised throughout my bones all the way up to my scull. Early days I was in so much pain that shifted from my back to my gut to my legs. Night sweats made for sleepless nights and the pain in the day was unbearable, Started Elligard in November and Xtandi two months ago. Virtually pain free within a week of starting Elligard and no real side effects from Xtandi other than swelling in my right foot. Calcium and Vitamin D every day. Are you still on Elligard, Cesar52?
Yes, Stage IV guy for 1.5 years on Eligard. Hot flashes, fatigue, bone pain now and then. First-year shots were quarterly. The last two injections have been six months in duration. I have a carefully designed and monitored Wellness Plan to help enhance my quality of life.
I have been diagnosed with PC with mets to the bone (5 places) for two years. On Eligard and Abiraterone Acetate and also have had an infusion treatment with Provenge. Numbers all good and physically I feel okay except for fatigue, hot flashes and pain where the cancer is when I overdue physically. I would love to have a "carefully designed and monitored Wellness Plan to help enhance [my] quality of life" but the practice I go to is small and does not have a social worker/counselor to help design such a plan. I especially am having trouble with recreating an intimate life with my spouse. He states he has no issues with me not being able to get an erection and having no sex drive any longer. This distresses me quite a bit, as I feel like a three year old with a 54 year old man I am living with. How does one maintain intimacy when motivation and equipment don't work like before. I am having serious trouble adapting. Suggestions anyone?
No. I have been off all treatment since August 2022. But my PSA is undetectable and despite the fact that I got hit with everything: surgery, ADT, radiation (39 sessions) and Xtandi , I have no regrets. I needed aggressive treatment for a very aggressive cancer. I strongly believe Xtandi made the difference. It’s an unbelievable drug. Best to you. Stay positive and hope for the best.
My guy was also diagnosed with stage 4 prostate cancer in Nov ! They gave him Lupron shots every 3 months ! It is in his bones and lymph notes ! He has done 5 chemotherapy s ! Tried Zomeda hated that lots of more pain ! He takes Aberitone 4 times a day ! Very fatigued ! Had a new injection for his bone issues 3 weeks ago ! He is sad !
If your PSA is elevated, you need treatment to lower it. No surgery and/or radiation your testosterone levels need to come down to castration levels (less than 50). Testosterone is a fuel por PC growth. At least a receptor blocker or ADT are necessary to control the disease. How low your T levels go, will depend on treatment.
Same Stage 4 in spine L2 and L1 L2 was radiated 2 yrs ago Back on Zolodex injections PSA was fine then back to 9.8 in Jan Put on Xtandi or Enzalutamide so within 6 10 weeks PSA 4 then 1.7
Just added Xgeva injections which pull calcium from blood into bones I take 1200 mg calcium a day
I have been diagnosed with PC with mets to the bone (5 places) for two years. On Eligard and Abiraterone Acetate and also have had an infusion treatment with Provenge. Numbers all good and physically I feel okay except for fatigue, hot flashes and pain where the cancer is when I overdue physically. I would love to have a "carefully designed and monitored Wellness Plan to help enhance [my] quality of life" but the practice I go to is small and does not have a social worker/counselor to help design such a plan. I especially am having trouble with recreating an intimate life with my spouse. He states he has no issues with me not being able to get an erection and having no sex drive any longer. This distresses me quite a bit, as I feel like a three year old with a 54 year old man I am living with. How does one maintain intimacy when motivation and equipment don't work like before. I am having serious trouble adapting. Suggestions anyone?
I have been on monthly Lupron injections for 21 years. I’m alive! Hormone therapy works if you are sensitive to the deprivation. Within two years, ALL hormones associated sexual desire intimacy, and the ability to feel “in love” are gone. I don’t notice this loss - it’s what the deprivation does. The real loser is my wife. She has stuck with me. She is the real cancer survivor, not me! As we age, we are one another’s caregiver. She is my best friend. I couldn’t live without her and I don’t think she could live without me. Sex is simply not what it’s held up to be! There’s so much more to a healthy relationship.
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Without surgery or radiation, how low can PSA go?
My PSA has been, for the last 4 months, .01. I think that it was this low due to ADT and Erleada, but I did have RP 10 months ago. My last ADT and Erleada medication was 4 months ago. The androgen receptor inhibitor medications ( such as Erleada ) has been a big help to many here.
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1 ReactionGreat to hear, I would like to stay on ADT as long as possible while avoiding radiation. My PSA and testosterone are undetectable. My cancer is regional and at this point can't be seen on any scans, that includes PSMA. My RAD therapist still wants to radiate.
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2 ReactionsThat is great. If the PSMA is negative is quite reassuring. I got radiation because I had three positive lymph nodes in pelvic region. They were gone after the 20th session. Glad your PSA is undetectable. Being on ADT for too long is not very good. Risk of heart issues, osteoporosis, high blood sugars. It’s great treatment but it has major side-effects too. Stay well.
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3 Reactionshttps://seer.cancer.gov/statfacts/html/prost.html New med not included explore by age race etc catagories
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3 ReactionsI have been diagnosed with PC with mets to the bone (5 places) for two years. On Eligard and Abiraterone Acetate and also have had an infusion treatment with Provenge. Numbers all good and physically I feel okay except for fatigue, hot flashes and pain where the cancer is when I overdue physically. I would love to have a "carefully designed and monitored Wellness Plan to help enhance [my] quality of life" but the practice I go to is small and does not have a social worker/counselor to help design such a plan. I especially am having trouble with recreating an intimate life with my spouse. He states he has no issues with me not being able to get an erection and having no sex drive any longer. This distresses me quite a bit, as I feel like a three year old with a 54 year old man I am living with. How does one maintain intimacy when motivation and equipment don't work like before. I am having serious trouble adapting. Suggestions anyone?
My guy was also diagnosed with stage 4 prostate cancer in Nov ! They gave him Lupron shots every 3 months ! It is in his bones and lymph notes ! He has done 5 chemotherapy s ! Tried Zomeda hated that lots of more pain ! He takes Aberitone 4 times a day ! Very fatigued ! Had a new injection for his bone issues 3 weeks ago ! He is sad !
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1 ReactionIf your PSA is elevated, you need treatment to lower it. No surgery and/or radiation your testosterone levels need to come down to castration levels (less than 50). Testosterone is a fuel por PC growth. At least a receptor blocker or ADT are necessary to control the disease. How low your T levels go, will depend on treatment.
Same Stage 4 in spine L2 and L1 L2 was radiated 2 yrs ago Back on Zolodex injections PSA was fine then back to 9.8 in Jan Put on Xtandi or Enzalutamide so within 6 10 weeks PSA 4 then 1.7
Just added Xgeva injections which pull calcium from blood into bones I take 1200 mg calcium a day
Feel great Tired some times
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1 ReactionI have been on monthly Lupron injections for 21 years. I’m alive! Hormone therapy works if you are sensitive to the deprivation. Within two years, ALL hormones associated sexual desire intimacy, and the ability to feel “in love” are gone. I don’t notice this loss - it’s what the deprivation does. The real loser is my wife. She has stuck with me. She is the real cancer survivor, not me! As we age, we are one another’s caregiver. She is my best friend. I couldn’t live without her and I don’t think she could live without me. Sex is simply not what it’s held up to be! There’s so much more to a healthy relationship.
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Helpful -
Hug
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