← Return to Stage 4 metastasis prostate cancer: Anyone had Lupron shots?

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@nishok

I have been diagnosed with PC with mets to the bone (5 places) for two years. On Eligard and Abiraterone Acetate and also have had an infusion treatment with Provenge. Numbers all good and physically I feel okay except for fatigue, hot flashes and pain where the cancer is when I overdue physically. I would love to have a "carefully designed and monitored Wellness Plan to help enhance [my] quality of life" but the practice I go to is small and does not have a social worker/counselor to help design such a plan. I especially am having trouble with recreating an intimate life with my spouse. He states he has no issues with me not being able to get an erection and having no sex drive any longer. This distresses me quite a bit, as I feel like a three year old with a 54 year old man I am living with. How does one maintain intimacy when motivation and equipment don't work like before. I am having serious trouble adapting. Suggestions anyone?

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Replies to "I have been diagnosed with PC with mets to the bone (5 places) for two years...."

I have been on monthly Lupron injections for 21 years. I’m alive! Hormone therapy works if you are sensitive to the deprivation. Within two years, ALL hormones associated sexual desire intimacy, and the ability to feel “in love” are gone. I don’t notice this loss - it’s what the deprivation does. The real loser is my wife. She has stuck with me. She is the real cancer survivor, not me! As we age, we are one another’s caregiver. She is my best friend. I couldn’t live without her and I don’t think she could live without me. Sex is simply not what it’s held up to be! There’s so much more to a healthy relationship.