1. < Kidney Cancer

Is 2 months average to have your kidney removed from RCC?

Posted by olive60oil @olive60oil, Mar 24, 2023

I have hemorrhagic renal cell carcinoma that is 8 centimeters. I saw an urologist yesterday for surgery. She told me that she is scheduling 2 months out because they are backed up. Am I the only one who thinks this is too long to wait. I have pain in my lower back that shoots down to my leg from it rubbing on my spine. I also have terrible exhaustion. My aunt and I think that it should only take one, maybe two weeks. How long have some of you folks had to wait. It could spread and I am suffering. I cannot imagine doing this for 2 months waiting.

Interested in more discussions like this? Go to the Kidney Cancer Support Group.

rtw1268 | @rtw1268 | May 3, 2023
In reply to @koke "Hi! I had kidney removed in October after biopsy confirmed I had kidney cancer. It has..." + (show)
@koke

Hi! I had kidney removed in October after biopsy confirmed I had kidney cancer. It has now spread to lungs and I have 2nd IV today. I also am taking a target drug. How are you feeling?

Jump to this post

I feel ok, tired. But that seems to be one of the side effects. I've just finished the second round of Opdivo. The first round had no effect. But you have to realize not everyone is the same. Have a CT scan scheduled for Tuesday to see if there is any change. How are you doing
And thanks for reaching out.
Rob

REPLY
rtw1268 | @rtw1268 | May 4, 2023
In reply to @koke "Hi, I was diagnosed first week of September and had kidney out last week of October:(..." + (show)
@koke

Hi, I was diagnosed first week of September and had kidney out last week of October:( Waiting was horrible. I did get a second opinion and realized this is bigger than me so I am going to an oncologist specializing in kidney cancer. My symptoms was a tremendous amount of blood in my urine.
I have stage 4 unclear RCC. It’s very hard for me…thank you for reaching out! I pray you’re feeling better!

Jump to this post

I'm almost 8 months in I've had mild syptoms from the immunotherapy. But I've got a great support group of family and friends. But now it's getting hard mentally. So talking with people who are dealing with this helps. Thanks

REPLY
1 reply
koke | @koke | May 4, 2023
In reply to @rtw1268 "I'm almost 8 months in I've had mild syptoms from the immunotherapy. But I've got a..." + (show)
@rtw1268

I'm almost 8 months in I've had mild syptoms from the immunotherapy. But I've got a great support group of family and friends. But now it's getting hard mentally. So talking with people who are dealing with this helps. Thanks

Jump to this post

I too am blessed having a great support team but I find it helpful to talk with people who have same diagnosis. Are you taking a target drug too? The drugs are playing a huge mind game and I’m just not myself…I tend to stay focused on day by day since I believe I’ll be taking these drugs for awhile:(

REPLY
1 reply
rtw1268 | @rtw1268 | May 4, 2023
In reply to @koke "I too am blessed having a great support team but I find it helpful to talk..." + (show)
@koke

I too am blessed having a great support team but I find it helpful to talk with people who have same diagnosis. Are you taking a target drug too? The drugs are playing a huge mind game and I’m just not myself…I tend to stay focused on day by day since I believe I’ll be taking these drugs for awhile:(

Jump to this post

I did 4 infusions of Opdivo/Yervoy, after the scan the spots on my lungs had tripled in size. The next round was 3 infusions of a double dose of Opdivo. My next scan is on Tuesday. It's tough waiting, because I'm a results type person and you can't feel or see if the fusions are working. So I try had have a positive attitude, but inside just freaking out. I really appreciate the support. Yep, just try and live the best life you can each day.

REPLY
1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | May 4, 2023
In reply to @rtw1268 "I did 4 infusions of Opdivo/Yervoy, after the scan the spots on my lungs had tripled..." + (show)
@rtw1268

I did 4 infusions of Opdivo/Yervoy, after the scan the spots on my lungs had tripled in size. The next round was 3 infusions of a double dose of Opdivo. My next scan is on Tuesday. It's tough waiting, because I'm a results type person and you can't feel or see if the fusions are working. So I try had have a positive attitude, but inside just freaking out. I really appreciate the support. Yep, just try and live the best life you can each day.

Jump to this post

I understand your positive attitude (even while you are
freaking out) and I'm wishing you the best results possible, @rtw1268.

How are you feeling? Will you post again and let me know how you are doing?

REPLY
1 reply
rtw1268 | @rtw1268 | May 4, 2023

Sure, I'll give a update Tuesday after my scan.

REPLY
rtw1268 | @rtw1268 | May 6, 2023
In reply to @hopeful33250 "I understand your positive attitude (even while you are freaking out) and I'm wishing you the..." + (show)
@hopeful33250

I understand your positive attitude (even while you are
freaking out) and I'm wishing you the best results possible, @rtw1268.

How are you feeling? Will you post again and let me know how you are doing?

Jump to this post

The drugs make you feel tired. So you don't feel like doing anything. But i make myself get up and do some yard work and house work.
Thanks for asking.

REPLY
twobeb87 | @twobeb87 | Jun 30, 2023
In reply to @koke "Hi! I had kidney removed in October after biopsy confirmed I had kidney cancer. It has..." + (show)
@koke

Hi! I had kidney removed in October after biopsy confirmed I had kidney cancer. It has now spread to lungs and I have 2nd IV today. I also am taking a target drug. How are you feeling?

Jump to this post

Did the biopsy seed the kidney cancer?

REPLY
1 reply
koke | @koke | Jun 30, 2023
In reply to @twobeb87 "Did the biopsy seed the kidney cancer?" + (show)
@twobeb87

Did the biopsy seed the kidney cancer?

Jump to this post

Yes. I had a CT scan suggesting RCC then the biopsy confirmed it the end of September and I had my right kidney removed on October 22 last year!

REPLY
1 reply
azitaanita1 | @azitaanita1 | Jul 1, 2023
In reply to @koke "Yes. I had a CT scan suggesting RCC then the biopsy confirmed it the end of..." + (show)
@koke

Yes. I had a CT scan suggesting RCC then the biopsy confirmed it the end of September and I had my right kidney removed on October 22 last year!

Jump to this post

How long did it take you to recover?
Did you had to change your diet?

REPLY
View MoreView Less
Please sign in or register to post a reply.