Shingrix and peripheral neuropathy

Saw my new psychiatrist Dr today and I believe she is going to solve some of my concerns. Next step PT. One day at a time. When can I stop all the things that I did in the past? Been though a lot of trauma in my life. No support system do I have. Just trying to hold on. Thxs for listening.

God bless and sending positive vibes your way. Here’s to moving forward with something that can help

We are experiencing the same frustration in my state. Most of the doctors who specialize in areas such as neuropathy, etc. have a waiting list of 6-12 months. I am on a waiting list to see a skin doctor and may not get to see her for 9 months to a year. Never have I experienced this. Does anyone know what is going on?
Yvie

Dw9050: the one inexpensive over the counter supplement that has helped a lot is Benfotiamine. I take 300mg twice a day but started with 150mg twice a day. When I mentioned it to my doctor after it worked (I found it online), he said “yes, Benfotiamine seems to work for a lot of people.” So many frustrating doctors out there. I can’t guarantee anything but it may be worth a try for about $10.

A woman called me out of the blue about 6-8 weeks ago and She said she was contacting me via the VAERS reporting system. She wanted to know what happened with me and she asked for the phone numbers of all my Doctors so that she could follow up with them regarding my Neuropathy. She sent me all her details and contact info. in case I have questions. She is in charge of my case. She has some of my medical info and is waiting for more to come in. I called her for an update and she is working on my case. She will be reaching out to me again soon. For anyone dealing with these serious adverse reactions due to the shingrix vaccine, keep everything and file a report right away!! Make sure that you have the vaccine lot numbers and dates, times and where. You will need to keep all this together to submit. The more of us that report it, the more eyes will be on this issue. My life has been turned completely upside down and I have a 9 year old son. I am also a single Mom.

My neuropathy was well controlled until second Shingles shot. Has anyone else had this reaction?

I had well controlled Peripheral Neuropath for last 5 years, after 6 years of therapy. 10 days ago, I had second Shingrix shot and now the pain in my right foot is more intense than ever.
Has anyone else had such severe reactions?

Welcome @leonabetts, I also have peripheral neuropathy for many years but fortunately only had the usual soreness in my arm as a side effect. You are not alone with the reaction though. You will notice that we moved your post to an existing discussion on the same topic here so that you can meet other members with similar reactions:
-- Shingrix and peripheral neuropathy: https://connect.mayoclinic.org/discussion/shingrix/.

Have you found anything that helps with increase pain?

I’m back on Gabapentin but it needs time to work. I haven’t had to take any meds for this in years. I’m not sure Shingrix has any link but the timing is curious. Just wondering if others have noticed.

Thank You

Maybe that's why they can't get my neuropathy under control. It seems I had the shingles shot then later the pain was more severe. Nothing is working at this point. Only option left is the implant. The cons outweigh the pros with the implant, so I will probably stay with my current treatment which is pregabalin. It is better than nothing I guess.