1. < Neuropathy

Shingrix and peripheral neuropathy

Posted by joannerhodes @joannerhodes, Feb 1, 2019

4 days after my 2nd Shingrix vaccination, I suddenly developed intense peripheral neuropathy in both feet...for the first time in my life...anyone else?

Interested in more discussions like this? Go to the Neuropathy Support Group.

pamelaz | @pamelaz | Jul 28, 2022
In reply to @memomsloan "I take it along with Gabapentin, 600 mg, at bedtimes." + (show)
@memomsloan

I take it along with Gabapentin, 600 mg, at bedtimes.

Jump to this post

How bad is your neuropathy? The doctor said mine won’t go away.

REPLY
1 reply
memomsloan | @memomsloan | Jul 28, 2022
In reply to @pamelaz "How bad is your neuropathy? The doctor said mine won’t go away." + (show)
@pamelaz

How bad is your neuropathy? The doctor said mine won’t go away.

Jump to this post

There is no predicting about whether mine will worsen of subside. How old are you? What’s other issues do you have going on?

REPLY
indysay68 | @indysay68 | Sep 2, 2022
In reply to @memomsloan "I have told of my experience several times over the last two years but now I..." + (show)
@memomsloan

I have told of my experience several times over the last two years but now I see more interest in the topic. Two days after #1 Shingrix shot, I noticed difficulty sleeping at night and having creepy/crawly feelings beneath the skin of my calfs as well as achy/tingling in my legs. Once I am up, I am not bothered by these symptoms. I followed The crumbs, finally saw a Neurologist who did the EMG and said I have sensory neuropathy with numbness on the bottom of my feet/toes, cause unknown. I have been on Gabapentin, 600 mg at bedtime and Amitriptyline 25 mg in the evening for the last 18 months. I sleep fine with these. Then the Pandemic came along and I have not been interested in changing anything. I do not want to get #2 Shingrix shot and have not had any doctor able to convince me otherwise. I had no numbness or sensory issues until the first Shingrix. My balance is good, my gait is fine and Yoga helps my legs. I don’t know if anyone is keeping a tally of these occurrences. Shingrix and chickenpox are both nerve root in origin. At first, I wanted to see if anyone had found a treatment but now I realize there is not much I can do. I have no pain. I have no belief in this improving but I can live with it. Mary Ann

Jump to this post

Hi,
I developed nerve pain in an injured foot within hours after getting Shingrix vaccine along with Tinnitus. Of course Kaiser won’t do anything about it or admit it came
from the vaccine. I will not be getting a second dose. I am looking into a lawsuit.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Sep 2, 2022
In reply to @indysay68 "Hi, I developed nerve pain in an injured foot within hours after getting Shingrix vaccine along..." + (show)
@indysay68

Hi,
I developed nerve pain in an injured foot within hours after getting Shingrix vaccine along with Tinnitus. Of course Kaiser won’t do anything about it or admit it came
from the vaccine. I will not be getting a second dose. I am looking into a lawsuit.

Jump to this post

Hi @indysay68, Welcome to Connect. Sorry to hear you developed nerve pain in your foot after receiving the Shingrix vaccine. You mentioned the foot was injured before you received the vaccine. Do you mind sharing a little more about the type of injury to the foot and any treatment or procedure that followed the injury?

REPLY
centeron5 | @centeron5 | Sep 22, 2022

@joannerhodes was it permanent to date? i already have PN of feet and that makes me more susceptible to further. I do not want to make it worse as may not be able to walk if it gets worse. thks

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Sep 22, 2022
In reply to @centeron5 "@joannerhodes was it permanent to date? i already have PN of feet and that makes me..." + (show)
@centeron5

@joannerhodes was it permanent to date? i already have PN of feet and that makes me more susceptible to further. I do not want to make it worse as may not be able to walk if it gets worse. thks

Jump to this post

Welcome @centeron5, I'm not sure @joannerhodes is still following Connect as the members last post was over a year ago. I'm just one person but I've had both COVID vaccines and the 2 boosters along with the flu vaccine and Shingrix vaccine and it did not make my idiopathic small fiber PN any worse. I've had neuropathy for over 20 years but just the numbness and some tingling with no pain.

Have you discussed the pros and cons with your doctor?

REPLY
jengarcia71 | @jengarcia71 | Sep 22, 2022

I received my second Shingrix shot on May 5th 2022. Within a week I started having numbness, burning pain and pins and needles feeling in both of my legs. I also experience whole body tremors that wake me up quite often as well as full body vibration. I have a hard time sleeping. I also experience muscle weakness in my arms and legs. I have been like this for several months now. I shake a lot just trying to take care of my son and home. Unfortunately I have a Dr who after 3+ months and several appointments refused to do any testing to find out what is wrong. I have been to urgent cares and er with no answers. They always told me to talk to my Dr.
I have had blood work done several times and it’s always perfect. I am not diabetic. I told my Dr my symptoms every time I saw him. He never took me seriously. I am now in the process of finding a new Dr. I am a single older Mom of an 8 year old son and what happened after getting the shingles vaccine is debilitating. I am livid that I went from normal to this and May never be normal again. I now wish I had known about this horrible side effect. I would rather get shingles than what is happening to me now. I trusted my Dr when he said to get the shingles vaccine when I turned 50. I am the first person to advocate for vaccines. I have lost trust now. This vaccine is dangerous and debilitating. I wouldn’t wish this on anyone. I can’t do the things I love to do anymore. I highly regret getting this vaccine.
I received my doses from a local rite aid. No one explained these worst case side effects. I feel hopeless.

REPLY
2 replies
cids | @cids | Sep 23, 2022
In reply to @jengarcia71 "I received my second Shingrix shot on May 5th 2022. Within a week I started having..." + (show)
@jengarcia71

I received my second Shingrix shot on May 5th 2022. Within a week I started having numbness, burning pain and pins and needles feeling in both of my legs. I also experience whole body tremors that wake me up quite often as well as full body vibration. I have a hard time sleeping. I also experience muscle weakness in my arms and legs. I have been like this for several months now. I shake a lot just trying to take care of my son and home. Unfortunately I have a Dr who after 3+ months and several appointments refused to do any testing to find out what is wrong. I have been to urgent cares and er with no answers. They always told me to talk to my Dr.
I have had blood work done several times and it’s always perfect. I am not diabetic. I told my Dr my symptoms every time I saw him. He never took me seriously. I am now in the process of finding a new Dr. I am a single older Mom of an 8 year old son and what happened after getting the shingles vaccine is debilitating. I am livid that I went from normal to this and May never be normal again. I now wish I had known about this horrible side effect. I would rather get shingles than what is happening to me now. I trusted my Dr when he said to get the shingles vaccine when I turned 50. I am the first person to advocate for vaccines. I have lost trust now. This vaccine is dangerous and debilitating. I wouldn’t wish this on anyone. I can’t do the things I love to do anymore. I highly regret getting this vaccine.
I received my doses from a local rite aid. No one explained these worst case side effects. I feel hopeless.

Jump to this post

You need to see a neurologist right away. Shame on your doctor for not referring you to a neurologist.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Sep 23, 2022
In reply to @jengarcia71 "I received my second Shingrix shot on May 5th 2022. Within a week I started having..." + (show)
@jengarcia71

I received my second Shingrix shot on May 5th 2022. Within a week I started having numbness, burning pain and pins and needles feeling in both of my legs. I also experience whole body tremors that wake me up quite often as well as full body vibration. I have a hard time sleeping. I also experience muscle weakness in my arms and legs. I have been like this for several months now. I shake a lot just trying to take care of my son and home. Unfortunately I have a Dr who after 3+ months and several appointments refused to do any testing to find out what is wrong. I have been to urgent cares and er with no answers. They always told me to talk to my Dr.
I have had blood work done several times and it’s always perfect. I am not diabetic. I told my Dr my symptoms every time I saw him. He never took me seriously. I am now in the process of finding a new Dr. I am a single older Mom of an 8 year old son and what happened after getting the shingles vaccine is debilitating. I am livid that I went from normal to this and May never be normal again. I now wish I had known about this horrible side effect. I would rather get shingles than what is happening to me now. I trusted my Dr when he said to get the shingles vaccine when I turned 50. I am the first person to advocate for vaccines. I have lost trust now. This vaccine is dangerous and debilitating. I wouldn’t wish this on anyone. I can’t do the things I love to do anymore. I highly regret getting this vaccine.
I received my doses from a local rite aid. No one explained these worst case side effects. I feel hopeless.

Jump to this post

Welcome @jengarcia71, I am so sorry to hear about your adverse reaction to the Shingrix vaccine. I'm also concerned that your doctor is ignoring you which is unacceptable. I would also be looking for a new doctor if it were me and would seek an appointment with a neurologist if possible.

I would also report the side effects to VAERS: https://www.cdc.gov/vaccinesafety/ensuringsafety/monitoring/vaers/reportingaes.html

Have you reported the Shingrix side effects to VAERS?

REPLY
1 reply
jengarcia71 | @jengarcia71 | Sep 23, 2022
In reply to @cids "You need to see a neurologist right away. Shame on your doctor for not referring you..." + (show)
@cids

You need to see a neurologist right away. Shame on your doctor for not referring you to a neurologist.

Jump to this post

Hi, thank you. At my insistence at my last appointment with him, he finally gave in and gave me a referral to a neurologist. My appointment isn’t until October 11th. However, this neurologist has nothing but really bad reviews. I am switching Drs and hoping to be able to see a neurologist at Loma Linda Hospital instead.

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.