Connect
Liver Fluke Fasciola Hepatica and the lives it wrecks
I have come to learn that if you have a parasite infection that you unknowingly give people free rein to discriminate and dehumanize. It started in fall 2020, like I'd had my chest filet open. The most god awful pain ever, lump in throat that continued to swell to where I couldn't swallow solids, spine would swell, neck and into ears and jaw so swollen like it was wired shut, my ear canal eventually swelled shut and the taste of amphibian came to mind as I developed a unusually disgusting constant slime feeling in mouth. Then the lump in throat seemingly ruptured one day in March 2021 as if I was stabbed from inside out, knocked the wind out of me.then proceeded to salivate for several days so much so I had to walk around with a cup and it continued to get thicker and then gritty and I noticed I was spitting up these little white things that looked like sesame seeds and they were moving so went to local ER and they diagnosed me as delusional right out the gate. I went to the emergency room and urgent Care combined a total of 14 times in a two week period as I knew that something much more sinister was coming down the pipeline from my symptoms I was having far worse than the one I already had and I proceeded to choke up things that look like that's what I said I even told them that it looks like flukes nobody would listen to me nobody would do anything and in fact I treated myself with albendazole and praziquantel and all it did was slow it down. Oh did I forget to mention that it's subcutaneous as well yeah it's not just in my gastrointestinal tract and I'm sure you guys will learn to who I am if it kills me because it's imagining it's in my central nervous system because one came out of my eye on January 3rd and it's only a matter of time literally I can feel quicker in my brain sometimes and like my whole head almost stutters on my head thinking problems timing scheduling I can't do anymore I've lost my job because I can't work it's all I can do to get through the day every 12 weeks it goes through a peak. And what I mean by that is goes crazy under my skin and the ones under my skin and in my eye and for my bell I'll look completely different cuz they're all in different stages of morphology and I don't think I'm a doctor but education is education and I've been forced to educate myself on this and I've been doing nothing but trying to save my own ass since March 21 and it's my story and if I don't tell it nobody else will and this disease right here I should not have to be beating down doors to get a blood test that should I have been to me in a country where we were made to think that we don't have this issue here but let me tell you I've done my homework and it's a known thing and we'll see the vets are well aware of the liver flick issue and virtually no farm is free of liver fluke in California and it is waterborne that's a fact and it was also a fact is that the doctors are so poorly educated on parasite infections that they would rather dismiss you and send you home sick as hell even though I've had plenty of signs that point to supporting what I'm saying I have but they don't care it's seriously like I'm living in la la land I mean I don't know how to explain it it's like the Twilight zone it's almost like it's being done on purpose because all they're doing is setting me up to die I'm going to die and if the last thing I can do before I die or in my desk is get the law changed so that people don't have to go to the CDC to get this blood test or the medication then that's what needs to happen because I shouldn't have to be fighting with what little energy I have in my body to just get simple freaking help the CDC said it's diagnosed by either eggs in your stool or by seeing adult flukes well here's my adult flukes take a look
Like
Helpful
HugInterested in more discussions like this? Go to the Infectious Diseases Support Group.
Connect
Thank you for sharing your story. Yes, looking at the pictures, I definitely see liver flukes. I’m also going through a liver fluke infection and was also dismissed by my doctor. I’m a registered nurse and I presented a good case but she questioned my mental health. I’ve taken a naturopath approach and am using supplements and parasite cleansing over the full moon. I’m seeing good results but I believe this will be a long road.
-
Like -
Helpful -
Hug
3 ReactionsI too have a parasite: have had for 8 months. I can relate as2 doctors have dismissed me and told me I’m imagining it. Meanwhile, I’m in a living hell. Science says demodex are microscopic but my case is do extreme that some are 2/3’s the size of a grain of rice. I gave things that look like demodex in my mouth! What are they? Science says demodex only live in hair follicles yet here they are. I keep having them on my tongue and between my teeth. I’ve tried to find out what this is. 8 doctors- no help! I have a group in my nose and get nosebleeds that are difficult to stop. Went to emergency and the P.A. said it looks like a broken blood vessel. I can see the white parasites there but she denied this. I pointed to some emerging from my skin. It’s very clear. She said it looks like flakes of skin. It’s clearly not. I had photos of them. She sss as I’d they don’t do labs there and scolded me for going to emergency for a skin problem. Meanwhile, I suffer day & night. Skin crawling. Eyes constantly burning & irritated. Trying not to go insane. Not sleeping. I would end my life if I didn’t fear death so much. There seems to be no hope. I’m self treating from you tube videos from others who are living this nightmare/ science fiction type life. Why is medicine failing us? This is real. It IS happening. And no one is helping.
-
Like -
Helpful -
Hug
3 ReactionsThose pictures do not appear to be a Fasciola Hepatica. I have stained some myself when I was in the lab and they look different. You need to see a tropical disease doctor or one experienced in parasitology.
I have had the same issue w internal and skin (+ eyes, nose, ears) for over a year. Same reaction by medical people. I was yelled at in emergency by a nurse! My heart breaks for you. It’s hell.
Thank you! I just looked at everything you’ve recommended. You may have just saved my life. I know I can’t live with this indefinitely and was wondering how one ends life. Thank you so much more than I can convey here.
-
Like -
Helpful -
Hug
3 ReactionsThis is a really helpful discussion. I’ve had a parasitic infection since May/June 2023 after travelling overseas for work, and lots of your symptoms & observations ring true to me (disgusting taste and slimy feeling in mouth / spitting up "things” size of sesame seeds or larger / itching around eyes / worm in stool / worm emerging from skin / self-medication with Albendazole Praziquantel "only slows them down" / medical professionals not taking you seriously). So far, a blood test for IgG Antibody to Echinococcus tapeworms (endemic where I was working in Germany), has come back negative. A stool parasite & egg test also came back negative. But the things are obviously still there, as indicated by the picture I’ve uploaded as one of these emerged out of my arm last week (which I could not have been imagining). I have plenty of pictures and samples saved in alcohol. An AI image analysis by Google Lens of pictures I’ve taken of these things has identified Fasciola hepatica from many of my images (no other parasites were identified). I’m working with my state MO state health department to have samples forwarded to the CDC for testing, and hopefully I’ll be able to have a blood test as well.
I have one question for you: Where you ever able to get a definitive positive medical test for Fasciola hepatica? And if so, how did you go about getting this accomplished? . I hope you’re feeling better now, and having better luck getting help from medical professionals.
-
Like -
Helpful -
Hug
3 ReactionsThank you for your post. I have one question for you. What medication are you referring to by the phrase “After the right parasite medication” ? I’m assuming, because this is thread about Fasciola hepatica, that you’re referring to Triclabendazole. Is that correct? This information would be very helpful. Thanks.
-
Like -
Helpful -
Hug
1 ReactionYour pictures look extremely similar to many of the images I've taken of parasite samples I've pulled from my mouth. Please have hope. While I know this is a REALLY DISPIRITING, I also know there is a way out of this with only the right medication to put a damper on these things. Have hope and be well! Hoping 2024 is a better year. Best, DavidSean ☺
-
Like -
Helpful -
Hug
2 ReactionsAnyone know what this is? I have them coming up every time I eat, for a few hours after. I had several months of Ivermectin last summer. That’s when it started. But it hasn’t stopped, even after the medication hasn’t been taken for months. Liver flukes?
Thank you! I have a new GP who is trying to get me in at Stanford. I’m also reading and doing a immune system healing protocol. I hope I can get rid of these parasites. I feel like I’m a host full of them. It’s a horror show and torture chamber 24/7!
Thanks again. I never imagined there could be such a thing as this.