Anyone have multiple meningioma brain tumors?

Hi guys, Great idea to get updates on all of us from years ago!!! I just did my MRI's after waiting 2 years from the last one. No new growth since then. One of mine has grown a small amount over the past several years, and funny but it was my first one that had remained stable for over 10 years. The 2nd one that had popped up after all my Breast Cancer surgery, radiation and chemo showed up the first time at the same size as my old one and then really didn't grow after that first year. My BC was NOT related to my Meningiomas....opposite actually as a triple negative instead of the expected estrogen fed brain ones. Hope most on "watch and wait" are still able to avoid surgery as I am!!!!!!

I have been keeping an eye on 2 meningiomas for 13 years. One started off gumball size and is now golf ball sized. The other is small and hasn’t grown. I have no symptoms so we’re not doing anything at this time.

Hi there,
I just have one meningioma, and I am deciding between the 3 options of wait and watch, gamma knife, or surgery.
I was diagnosed last august.
Mine is in a tricky location. Most neurosurgeons say to wait and watch, some say gamma knife, and there’s 1 who specializes in this area of the brain and has completed many many successful removals. Anyway, I’m almost 47, and I look at it this way, but I think I need to hear more opinions from others who are in my shoes.
It’s as small as it will be right now. And I’m not getting any younger. It will grow. It is 2.8cm currently. It can become catastrophic if it grows.
Along thjs journey, I’ve met some people who swear their Dr is the best. At a different facility. Etc. and I suppose I’d be foolish not to meet with another great neurosurgeon.
Waiting and watching is literally wondering 24/7 what’s going on in my head. It is close to impossible to “forget about it for the next 6 months”. Living like this is brutal.
Gamma knife has good outcomes of stopping the growth. But then again, we then wait and watch. Surgery comes with such risk. Hence why I found a neurosurgeon who specializes in this area.
It would be wonderful to get this out of me. Meeting with that surgeon again 6/9.
I pray for a sign each day. And I will continue to pray for all of you. Please feel free to share your train of thoughts here. I feel like I need to hear it all.

Hi there,
I just have one meningioma, and I am deciding between the 3 options of wait and watch, gamma knife, or surgery.
I was diagnosed last august.
Mine is in a tricky location. Most neurosurgeons say to wait and watch, some say gamma knife, and there’s 1 who specializes in this area of the brain and has completed many many successful removals. Anyway, I’m almost 47, and I look at it this way, but I think I need to hear more opinions from others who are in my shoes.
It’s as small as it will be right now. And I’m not getting any younger. It will grow. It is 2.8cm currently. It can become catastrophic if it grows.
Along thjs journey, I’ve met some people who swear their Dr is the best. At a different facility. Etc. and I suppose I’d be foolish not to meet with another great neurosurgeon.
Waiting and watching is literally wondering 24/7 what’s going on in my head. It is close to impossible to “forget about it for the next 6 months”. Living like this is brutal.
Gamma knife has good outcomes of stopping the growth. But then again, we then wait and watch. Surgery comes with such risk. Hence why I found a neurosurgeon who specializes in this area.
It would be wonderful to get this out of me. Meeting with that surgeon again 6/9.
I pray for a sign each day. And I will continue to pray for all of you. Please feel free to share your train of thoughts here. I feel like I need to hear it all.

No. I didnt have any side effects from cyber knife. I had 5 treatments in a row for 5 days one hr. Each time. My tumor is 7mm in size behind my right eye. The original tumor was on mytemporal lobe it was the size of a ping pong ball. I wish ur sister all the best.
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