Living with Neuropathy - Welcome to the group

Sorry health care access difficult. I feel feel very fortunate to be able to access care.

Before takiing Tizanidene I was up three or more times each night.

Has anyone tried PT? I've been going and the leg cramps have subsided. Strengthening of the muscles help nerve pain along with Lyrica.

Hello- PT is my next question to my doctor. I've lost so much strength in my feet, hands, legs. So sad!

Hello @jayne229, Welcome to Connect. PT is a great question to discuss with your doctor. We neuropathy folks need to exercise for many reasons to help us keep moving. There are a few other discussions you might also want to check out:

--- Neuropathy & Exercise: https://connect.mayoclinic.org/discussion/neuropathy-exercise/
--- Water Exercise for Peripheral Neuropathy: https://connect.mayoclinic.org/discussion/water-exercise-for-peripheral-neuropathy/
--- Peripheral Neuropathy - Stretching and Exercise: https://connect.mayoclinic.org/discussion/peripheral-neuropathy-stretching-and-exercise/.

Have you tried doing any specific exercises to help with the strength in your feet, hands and legs?

I am 77 and have been living with neuropathy for 13 years. My symptoms have been manageable mostly in the toes and hands. Since my wife’s diagnosis of dementia tingling, numbness and pain have move up to the knee and elbow. Legs are more sore and weak but I continue to walk. Is it possible the stress caused by my wife’s condition has made my idiopathic peripheral neuropathy worse. I am not diabetic but recent A1C was 5.7 and fasting glucose 94

@gbrodnan1945, Stress can make the neuropathy pain worse. Here's an explanation:
--- How Stress May Worsen Peripheral Neuropathy Pain: https://fapnewstoday.com/columns/stress-peripheral-neuropathy-pain-tips/.

I find that when I get stressed I try to take a short walk or even just stop and take a moment to look out the window and watch some of the birds around our bird feeder which has a calming effect on me. Have you found any ways to relieve some of the stress?

Hi folks,
I just found the group, and am interested in learning what treatments are “out there” besides the medication I am taking. My neuropathology is a bit complicated because of pre-existing conditions related to massive brain trauma and (unrelated)chemotherapy, later compounded by (unrelated) brain stem tumor/surgery.

I have neuropathy in my feet, going up my legs.For the past few years, I have been having UTI's, vaginitis. I take the meds and it always comes back. Sometimes there is no infection and I still have burning. Could there be nerve damage in that area causing the burning? My urologist doesn't know, Urogynecologist doesn't know. I need to go back to my neurologist. Anybody else have this problem?

Welcome @adchandler, There are a lot of different treatments available for neuropathy that people with neuropathy have found helpful. One of the more comprehensive lists I've seen is on the Foundation of Peripheral Neuropathy's website here - https://www.foundationforpn.org/treatments/. They also have a list of complementary and alternative treatments that might be worth reviewing here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

You might also find the following discussions helpful:
--- Member Neuropathy Journey Stories: What's Yours?:
https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
--- What helps the symptoms of Small Fiber Neuropathy?: https://connect.mayoclinic.org/discussion/tingling-from-small-fiber-neurapathy/
--- Small Fiber Neuropathy: What helps?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/.

Have you looked into any alternative treatments?