Post Covid internal vibrations & hair loss

Posted by karendn @karendn, Nov 8, 2022

Hi, I’m a 61 yo woman who spent 16 days in ICU with bilateral. Pneumonia, acute kidney failure, acute respiratory failure & acute hypokalemia in Nov-Dec of 2021. To back up, I have had “Battles” with severe sepsis & septic shock off & on for the past 22 months & the etiology is still unknown! So after my last hospitalization in May, I noticed my hair was no longer falling out by the buckets after Covid; it was literally GONE within 5 days! I have been to every medical discipline known to man. They don’t know why I continue to get septic; but agree my hair loss is 100% due to long Covid. I guess I just assumed it was from the stress to my body from all 13 sepsis hospitalizations. About 8-10 weeks post Covid I had mild internal vibrations! Just brushed it off. Then they became more frequent, harder & lasting up to 2-3 hours. At first, I accused my friend of having a couch that vibrates. She looked at me like I’d lost my marbles & said “there is nothing vibrating”. Of course I insisted she come sit where I was & feel for herself… nothing. I said “well feel my arm”… she said “I don’t feel anything”. Then I stood up & said “Oh Sh…, the floor is vibrating really hard!” And again “NOPE”. I’ve been to a couple Dr.’s who have no idea why this is happening. I have an appointment with a Neurologist in Dec. & hopeful for some answers! I’m so darn grateful I came across this website!! I’m shocked AND relieved that so many others suffer these vibrations. Mine happen more frequently when I lay down to sleep; but happen in addition to that at least 2-3 times during the day. When they are severe, I can’t walk around or drive. Mine are throughout my entire body. My feet & head are the worst. I feel my entire body jumping ; it amazes me that no one can see or feel them. My brain & teeth even feel like they are “trembling” ! Since I’ve gotten no answers, I’ve learned to just embrace it until someone comes up with a definitive DX &/or TX!! Now I just go lay in my bed & turn on my bed vibrator as high as it will go for as long as it takes! When my bed is vibrating, it makes my internal vibrations feel less apparent! I don’t venture out too far anymore because I’m a bit paranoid it will happen in public where there may not be a chair! I definitely lost my career probably indefinitely due to my health, which before sepsis was great! I have memory issues also; so working in a hospital caring for patients isn’t in the cards! In this journey of mine; I’ve had to rely on my new “motto” … “PAIN shapes a woman into a WARRIOR!” And for the gal that I ran across also with hair loss issues; I share this with you: “You don’t need hair to wear your crown honey!” Peace & Love 💕 God Bless y’all, “May you find comfort from your afflictions through Jesus Christ our Lord & Savior”!! Stay faithful 🙏🏼🫶🏼♥️🙌🏼

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@1tremorgirl

Has anyone found anything helpful with internal shaking after having had covid?

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Yes internal shaking and overall joint pain and weakness! Anyone else?
(I have long term OA and RA! ) rsvp?

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@1tremorgirl

Has anyone found anything helpful with internal shaking after having had covid?

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@1tremorgirl, I moved your post about internal shaking to this related dicussion:
- Post Covid internal vibrations & hair loss https://connect.mayoclinic.org/discussion/post-covid-internal-vibrations-hair-loss/

@felicia2, you may also be interested in this discussion:
- Joint inflammation and muscle pain after COVID https://connect.mayoclinic.org/discussion/joint-inflammation-and-adults-possibly-from-covid/

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@jillfl

I have had buzzing and internal (tremors) vibrations and muscle spasms since May 5, 2022 but never got Covid until June 6th? So it’s a real dilemma because I got Covid after my tremors started. I’ve had 3 vaccines before I got these weird sensations. Between my PCP, neurologist, and Cardiologist all my testing results are negative. The vibrations are slowing down to the p.m. timeframe and the buzzing is subsiding as well. It’s been a crazy ride because you just want to run away from your body. It’s very difficult to explain because I look fine. No one sees that I am having any issues.

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Test your b-12 and folate levels. Low levels can cause neuropathy and neural symptoms. 🤞

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The neurologist did extensive blood work and those levels were included. Everything normal.

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Muscle spasms have finally decreased to just a few every few days. The internal vibrations/buzzing is only in my legs in the evening. A mystery…
It will be a year May 5.

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