1. < MAC & Bronchiectasis

How does bronchiectasis progress?

Posted by @ling @wangling, Mar 31, 2023

Hi all,
As I am reading, that bronchiectasis is a chronic and progressive disease.
How does it progress based on your experience? I seem to remember that some people are able to keep the condition stable. Does cough make the condition worse?Your experience is greatly appreciated.
Thanks!
Ling

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liz440 | @liz440 | Apr 25, 2023
In reply to @leilam "I am having a hard time finding 3% NS for my Nebulizer. Is anyone else having..." + (show)
@leilam

I am having a hard time finding 3% NS for my Nebulizer. Is anyone else having the same problem. Have you ever made your own Nebulizer Saline? My Dr gave me a recipe for it. But I am afraid I will goof up and it want be sterile.

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It is extremely difficult to find in my area. I called a huge number of Walgreens and found some way north of me. Luckily they fedexed it to me. I had been buying from a supplier but he did not answer my last email. It was costly. Walgreens takes goodrx and was lots cheaper. I would advise looking up walgreens on google maps and trying same state but further away in both directions.

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1 reply
leilam | @leilam | Apr 25, 2023
In reply to @liz440 "It is extremely difficult to find in my area. I called a huge number of Walgreens..." + (show)
@liz440

It is extremely difficult to find in my area. I called a huge number of Walgreens and found some way north of me. Luckily they fedexed it to me. I had been buying from a supplier but he did not answer my last email. It was costly. Walgreens takes goodrx and was lots cheaper. I would advise looking up walgreens on google maps and trying same state but further away in both directions.

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I bought some from Amazon and I had to pay for it myself, of course. Quite pricey but I had built up some money in my account from my credit card so made so it wasn't too bad. I checked my Walgreens and they didn't have any but they don't except my insurance anyway.

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1 reply
liz440 | @liz440 | Apr 25, 2023

Walgreens will accept good rx coupon at price around $11.70. Please call other Walgreens pharmacies in your state at about 30 plus miles distance from your local one. It is available at SOME walgreens and not others for some bizarre reason.

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liz440 | @liz440 | Apr 25, 2023
In reply to @leilam "I bought some from Amazon and I had to pay for it myself, of course. Quite..." + (show)
@leilam

I bought some from Amazon and I had to pay for it myself, of course. Quite pricey but I had built up some money in my account from my credit card so made so it wasn't too bad. I checked my Walgreens and they didn't have any but they don't except my insurance anyway.

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Thanks for the Amazon tip. I have Amazon prime and just bought 1 month of sod chloride 3% for $10.10 with free shipping (I had a script there from before but at the time they couldn't get any). We'll see if it ships but that is a better price by $1 plus dollars than Walgreens at 11.70! What a game.

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1 reply
leilam | @leilam | Apr 25, 2023

I didn't need a subscription.

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irenea8 | @irenea8 | Apr 26, 2023
In reply to @cared "My pharmacy is also having a difficult time locating 3% vials but did locate and stock..." + (show)
@cared

My pharmacy is also having a difficult time locating 3% vials but did locate and stock vials containing 15L with instructions to pour only 4ml into nebulizer. I use one vial 2x a day. I have however wondered if reuse of the vial is sterile. Not sure about making your own but again the importance of a sterile solution shouldn’t be discarded. I wish you luck in locating 3% for the benefits of its use is most helpful.

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You can find it on Amazon 3% hypertonic saline by NEVAH Pharmacy

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fdixon63 | @fdixon63 | Apr 26, 2023
In reply to @cared "My pharmacy is also having a difficult time locating 3% vials but did locate and stock..." + (show)
@cared

My pharmacy is also having a difficult time locating 3% vials but did locate and stock vials containing 15L with instructions to pour only 4ml into nebulizer. I use one vial 2x a day. I have however wondered if reuse of the vial is sterile. Not sure about making your own but again the importance of a sterile solution shouldn’t be discarded. I wish you luck in locating 3% for the benefits of its use is most helpful.

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Just received a text from my CVS (in Alabama) that they have my 3% Sod Chlor ready for pick-up. Seems I'm getting it this month but who can tell if it will not be available next month. Good luck to us all.

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AZ | @equanimous | Apr 27, 2023
In reply to @liz440 "Thanks for the Amazon tip. I have Amazon prime and just bought 1 month of sod..." + (show)
@liz440

Thanks for the Amazon tip. I have Amazon prime and just bought 1 month of sod chloride 3% for $10.10 with free shipping (I had a script there from before but at the time they couldn't get any). We'll see if it ships but that is a better price by $1 plus dollars than Walgreens at 11.70! What a game.

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Can you send the link to Amazon. I looked up the 3% saline and could not find any for $10.10. I, too, have Prime. Thanks so very much!

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1 reply
liz440 | @liz440 | Apr 27, 2023
In reply to @equanimous "Can you send the link to Amazon. I looked up the 3% saline and could not..." + (show)
@equanimous

Can you send the link to Amazon. I looked up the 3% saline and could not find any for $10.10. I, too, have Prime. Thanks so very much!

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even cheaper today. $5.30. It's through Amazon Pharmacy and you have to have a prescription transferred to them (they will do it as I remember) https://pharmacy.amazon.com/Chloride-Generic-Nebusal-Inhalation-Solution/dp/B0B49VMXMD?ref_=sr_1_3&s=amazon-pharmacy&keywords=sodium+chloride+3%25&qid=1682642552&sr=1-3/dp/B0B49VMXMD?ref_=sr_1_3&s=amazon-pharmacy&keywords=sodium+chloride+3

Don't pay attention to the picture. I received vials. Nephron Co.

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2 replies
liz440 | @liz440 | Apr 27, 2023
In reply to @liz440 "even cheaper today. $5.30. It's through Amazon Pharmacy and you have to have a prescription transferred..." + (show)
@liz440

even cheaper today. $5.30. It's through Amazon Pharmacy and you have to have a prescription transferred to them (they will do it as I remember) https://pharmacy.amazon.com/Chloride-Generic-Nebusal-Inhalation-Solution/dp/B0B49VMXMD?ref_=sr_1_3&s=amazon-pharmacy&keywords=sodium+chloride+3%25&qid=1682642552&sr=1-3/dp/B0B49VMXMD?ref_=sr_1_3&s=amazon-pharmacy&keywords=sodium+chloride+3

Don't pay attention to the picture. I received vials. Nephron Co.

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oops the $5.30 isn't the real price when I add it to my cart - 60 vilas 10.10

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