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MGUS with Polycythemia Vera (PV)

Blood Cancers & Disorders | Last Active: May 6, 2023 | Replies (38)

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@vnvet

Yes, I take 500mg of hydroxyrea daily but have not required phlebotomies for nearly a year as my blood samples have stabilized between 45 - 50. I see my Oncologist every 3 months now for checkups. While the PV blood chemistry seems to have stabilized, I've experienced an increase in arm bruise marks and skin cancer eruptions on my arms and scalp. I never had any of these problems prior to my service in Vietnam as a combat where I flew low level missions often in Agent Orange sprayed areas as a combat rescue helicopter pilot either landing in or hovering over treated areas where crew exposure to and injestion of the agents was impossible to avoid. It is very difficult for me to believe that there is no connection between Agent Orange exposure and these medical problems I've been experiencing.

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Replies to "Yes, I take 500mg of hydroxyrea daily but have not required phlebotomies for nearly a year..."

Thank you for your service to us. My husband was in Vietnam 64-68 in the Navy. However, he passed from Covid in 2020. Bless you.