Connect
Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Like
Helpful
HugInterested in more discussions like this? Go to the Lung Cancer Support Group.
Connect
Thank you so much for sharing as your thoughts, feelings, conflicts are similar to mine. Husband diagnosed in 11/22 with stage 4a NSCLC. Planning…..yes, it’s difficult, especially when it’s a part of your marriage to go, do, travel etc. My husband was admitted 4/13/23 to the hospital because he asked me to take him to the ER because of trouble breathing. He has had chronic inflammation since 8/22 and the cancer was diagnosed 3 months later. The inflammation has been treated with steroids and he is back on them. The hospital stay of 7 days revealed embolisms in R lung and leg. He is home using FT oxygen. We have plane reservations on May 15 that he insists on keeping. We never asked and were never offered time prognoses. We will be married 50 years in 1/24. To young couples, they may think, well you you were lucky to have had each other that long. It’s never long enough……
-
Like -
Helpful -
Hug
4 ReactionsHi @confident, Welcome to Mayo Connect. I love your selection for your name, and I’m glad you found us. There are other EGFR patients here, who are taking Tagrisso.
I have the ALK mutation, so I take a different targeted therapy, but the side effects are usually similar and even after three years continue to be a challenge for me sometimes.
If you are comfortable sharing, what stage was your cancer identified, and just a couple of months ago?
-
Like -
Helpful -
Hug
2 ReactionsGood morning Lisa.....diagnosed with Stage 4 in February of this year. What a shocker....out of the blue!! It has been a real "roller coaster" since then, but doing my best to stay positive. Will have my next PET on May 9 to see if the Tagrisso is doing it's "magic".....keeping fingers crossed. If having side effects is a positive thing, then I am confident that it is working. My major complaint right now is shortness of breath and cough. I can handle the fatigue and occasional diarrhea. Other effects are minimal. So thrilled to hear that you are three years out.
-
Like -
Helpful -
Hug
1 ReactionHi I’m Theresa and just had the upper lobe removed from lung cancer. The good news is that it’s stage one. I’m in week three of recovery and have a constant pain under my breast and across my ribs. I guess this is just the healing process but wonder if there is an exercise to ease the pain Love and Peace
-
Like -
Helpful -
Hug
1 ReactionHearing the diagnosis is never easy, but for those of us with mutations, it is usually a complete surprise. I was sure I had some sort of fungal infection, Nope, it's lung cancer! What?!
I'm hoping that your PET shows a reduction in the cancer. Keep an eye on the shortness of breath and cough, if it gets worse and not better, you should probably reach out to your oncologist. Those can be signs of other issues that can occur with the targeted therapies (lung inflammation). Wishing you the best, take care.
Hello. I am new to this group I am recovering from a lobectomy 2 weeks ago. I have or had a carcinoid tumor. Pathology is still pending. The middle lobe of my right lung was removed
-
Like -
Helpful -
Hug
2 ReactionsHi Theresa, I just hit my 4 week mark after LUL Segmentectomy and a small lingular wedge. Also had both breast implants removed due to encapsulation and calcification. All in the same operation. I too still have the soreness and aches and pains of under the front breast incision(for the lung surgery) and the back and side incisions. My surgeon recommended using those lidocaine patches to help ease those pains. Like Aspercream or Solanpas. She said you could cut them to fit the area but do NOT put them on any incisions. I know Mayo offered a booklet for Pain after surgery and how to deal with it without more medications and it talked about Yoga, Tai chi, meditation, etc. You may be able to go on to their website and find it. The best thing, of course, is to talk with your surgeon about what you are allowed to do at this stage of healing. Good luck to you and I hope you heal well!
Cindy
Thank you
Greetings MJane , Well, hope you are feeling and doing well. Sorry that you have joined this group unwillingly, but good to have you here. This group of Mentors and people just like you are very knowledgeable and helpful. Hope you will ask any questions you need to or just get to know others on here that can give you guidance or information or whatever you may need. They are a great group and have big Ears and big Shoulders!
The lung module/ tumor is or was a carcinoid. The pathology results are still pending. The middle lung was removed. Has anyone here gone through this!