MGUS and Curcumin/Tumeric

Could you please write me exactly what it is that you take. I read all those same studies and want to find out what pills those are in the photo, as the physicians in the studies I read spoke of that exact combination. Many good things are written about black pepper extract as well as the curcumin. . Thank you. Take care.

Interesting. My dog was recently dxd with fibroblastic Ca. Very little research "out there" but little we could find resulted in new diet with supplements of tumeric and turkey tail. Very interested to hear about tumeric tx in adults.
I have FVL (one marker) on blood thinner- eliquis for life. Asked hematologist about using holistic approach -tumeric. Not supported. I agree nutrition and alternatives not taught in medical school, thus lots to learn. Would much prefer other tx than big pharma. Anyone using natural blood thinner vs. prescription??

I found this 5 minute video worth the time. Quote: "Just because something is natural and plant-based doesn’t mean it’s necessarily safe. Those who are pregnant, have gallstones, or are susceptible to kidney stones may want to moderate their turmeric consumption."
https://nutritionfacts.org/video/who-shouldnt-consume-curcumin-or-turmeric/
I've put my Curcumin supplement (found via my subscription to consumerlab.com) and tumeric spices on the shelf for now although I was hoping to find a way to decrease my MGUS that falls under the category of "IgG with Lambda Light Chain with Faint Bands".

Everyone is so different and I hope those of you that are using it do very well and report back here! However, for me I need to know more. For example, I want to make certain I don't decrease my iron and ferritin levels (which I don't store) or aggravate a possible gallbladder problem.

The nutritionfacts.org website has additional videos about Curcumin and Tumeric (do search at home page). This one might be helpful to those of you who have MGUS or Multiple Myeloma:
https://nutritionfacts.org/video/turmeric-curcumin-mgus-and-multiple-myeloma/
It has prompted me to look further into using a plant based diet.

My hem/onc doc didn’t poo, poo, herbal treatment, but he sure didn’t recommend it. He said that he had yet to see any empirical evidence that suggests that it is helpful to MGUS patients.

I had done a quick perusal of the literature, and found some support, but not really anything to jump up and down about and a lot of what I read was old.

Has anybody done a deep dive into actual studies on this?

I like data.

Happy Tuesday!

Patty

I cannot find results re past trials using curcumin so I assume none have been completed.
However, I found it helpful to read about the Memorial Sloan Kettering Cancer Center Trial for a Plant Based Dietary Intervention in MGUS and SMM patients. See: https://clinicaltrials.gov/ct2/show/NCT05640843
It is in the recruiting phase. The anticipated completion is 3 years off. Participants not in the control group will get:
1. PLANT BASED diet
2. Algae OMEGA 3 supplements (QWell Pharma)
3. CURCUMIN supplements (Sabinsa Pharma)
plus
Stool BUTYRATE levels will be measured at 12 weeks.
I plan to read more about the collaborators: Paula and Rodney Riney Foundation, Plantable, M and M labs and Veggie Doctor.

I have been on baby aspirin for many years. Occasionaly stop for a few days, and then start again. I have not had another blood clot since starting the aspirin. Previously had a lung embolism.
Gina5009

Tx for taking time to write. Do you have Factor Five Leiden?

Thanks! I will look at this as well.

Here’s are some articles I found.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7141712/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5941128/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6424351/#:~:text=ESSENTIAL%20TURMERIC%20OIL%20COATED%20CURCUMIN&text=ETO%20curcumin%20has%20been%20shown,circulation%2C%20compared%20with%20standard%20curcumin.

This from Consumer Reports ON HEALTH news letter:
“The Turmeric Myth: Lots of People take turmeric supplements to ease their arthritis pain and inflammation. But there is no clear evidence that turmeric supplements are beneficial for people. And supplements are loosely regulated, so you can’t always be sure of what exactly they contain.”
May I lovingly suggest that we thoroughly research what we all too eagerly take in hopes that MAYBE it will help, because we might be better off without it.
Wishing everyone well.