Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

My husband has had 2 acoustic neuromas seven years apart removed. They have been wrapped around his brain stem on the right side.
The first one was discovered with him having balance issues and headaches. His last surgery was February 2018. Post op he had issues closing his eyelid all the way except for 1/4 “. We used several kinds of drops, ointments, and gels in his eye to keep his eye lubricated.
He also needed to wear a patch to help with light issues.
In September 2018 he was operated on by a neuro opthomologist who placed a platinum implant into his eyelid. Immediately he was able to close his eye. He will continue to have MRI’s and be monitored for re-occurance.

@rose4622
Hi Rose:

I've been thinking about you. I hope you are doing well.
Have you made any decision yet about proceeding with the gamma knife surgery?
Wishing you well.

Does anyone have an Oligodendroglioma tumor?

Hello @user_chea8a92a

I noticed that you post periodically about your tumor. While we wait to see if others will post to you, I was just wondering: How are you feeling? Is your situation stable now? Are you having any treatments currently? Please feel free to share only as you are comfortable doing so.

I went to Mayo for MRI. It showed no regrowth. Surgeon was excited about my recovery thus far. Did not recommended GK at this time. Continuing vestibular rehab. I am so happy with my recovery so far. I am working on my anxiety that is mostly around fear of falling .

Congrats on the good news @rose4622 Woot woot!

So good to hear, @rose4622.

I'm so pleased for you! I know you did not want to face GK and I can certainly understand that. Keep working on the vestibular system and keep smiling😊

Thanks Scott. It's been so hard but starting to get some of my life back. I'm so thankful for that!

Thanks Teresa. I will. ☺

Well yes it’s been a journey after my Brain surgery. My balance is horrid some days. My eyes get more tired if I do too much. Motion drives my head crazy. It’s been 4 years since my surgery and my nerves on the left side of my brain are still very tender . I look at it this way. It’s been an unbelievable thing that happened too me. It’s taught me a lot , and each day is a challenge. My son says after my surgery , my thinking and thought pattern is off and I know it is. Just didn’t feel anyone really noticed.