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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.
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Oh, I'm so sorry to hear that, @rose4622! You certainly did not need that to happen. How are you feeling today? Did you get any instructions regarding self-care for a concussion? Have you contacted your Mayo surgeon to see if any extra precautions should be taken given your recent brain surgeon? I hope that the vomiting has ceased by now.
Praying for you. Will you post again and let me know how you are doing?
The vomitting has stopped but stomach pain is awful! Don't know how to reach Dr Bendock at Mayo.
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1 ReactionHello @rose4622
Mayo probably has a patient portal (an email kind of set up that you can use to communicate with doctors, get test results, etc.). Most doctors have their RNs check the patient portal for questions and someone will usually get back with you if you have a problem and/or serious question.
Will you try that?
If I'm not better today I will. So far I am keeping food and water down. I'm takig zofran for nausea.
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1 ReactionPlease take care of yourself, @rose4622. I feel concerned for you. Praying that you have a better day and that all goes back to normal.
I learned a valuable lesson about mindfulness after that bonk on my head. Feeling better but still some vertigo and nausea. Much improved!
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1 ReactionGood to hear that you are feeling better and also about the mindfulness lesson. It's tough to learn the hard way, but nonetheless it is important! Good to hear from you, @rose4622
Did anyone have gamma knife after craniotomy for AN? Did you suffer any side effects from it? I have been through so much and I'm weary. I have an MRI next month and my surgeon scheduled me to see a radiologist after. I'm worried.
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2 ReactionsHi @rose4622,
I merged your discussion about finding others who’ve had gamma knife for AN with this discussion in the Brain Tumor group, so that you could reconnect with the members who've joined this discussion.
I can only imagine what a toll this must be taking; what are you most concerned about?
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1 ReactionHello @rose4622
You have been on my mind and I'm glad that you posted. Yes, I'm sure that another procedure is not what you want to think about for the new year. I would like to invite @annedodrill44 into this discussion. Her husband had the gamma knife procedure at Mayo in Minnesota and she has shared a good report.
Did the doctor explain the purpose of the gamma knife procedure? Is it to clean up the remaining part of the tumor that was left behind after the surgery?
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