Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Posted by Tracy Lynne Daley @tracylynnedaley72, Jul 23, 2015

My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

@rose4622

Hi Teresa
Only got to work with one client because the office parking lot was replaced. That was good for me because my physical therapy made my balance problems worse. It's normal they said as we are challenging the brain . I am tempted stop going but if helps eventually I want to keep going.

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Hi @rose4622,

Yes, I also experienced more dizziness and nausea when beginning PT for balance issues. That is certainly normal. It does usually get better, though. I'm glad that you had a shorter work week.

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@rose4622

Three 1 hour sessions on different days.

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I bumped my head hard getting in my husband's car yesterday and ended up in er with a concussion. It has been miserable I lost conscience for short times while vomiting. So scary!

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@rose4622

I bumped my head hard getting in my husband's car yesterday and ended up in er with a concussion. It has been miserable I lost conscience for short times while vomiting. So scary!

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Oh, I'm so sorry to hear that, @rose4622! You certainly did not need that to happen. How are you feeling today? Did you get any instructions regarding self-care for a concussion? Have you contacted your Mayo surgeon to see if any extra precautions should be taken given your recent brain surgeon? I hope that the vomiting has ceased by now.

Praying for you. Will you post again and let me know how you are doing?

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@hopeful33250

Oh, I'm so sorry to hear that, @rose4622! You certainly did not need that to happen. How are you feeling today? Did you get any instructions regarding self-care for a concussion? Have you contacted your Mayo surgeon to see if any extra precautions should be taken given your recent brain surgeon? I hope that the vomiting has ceased by now.

Praying for you. Will you post again and let me know how you are doing?

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The vomitting has stopped but stomach pain is awful! Don't know how to reach Dr Bendock at Mayo.

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@rose4622

The vomitting has stopped but stomach pain is awful! Don't know how to reach Dr Bendock at Mayo.

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Hello @rose4622

Mayo probably has a patient portal (an email kind of set up that you can use to communicate with doctors, get test results, etc.). Most doctors have their RNs check the patient portal for questions and someone will usually get back with you if you have a problem and/or serious question.

Will you try that?

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@hopeful33250

Hello @rose4622

Mayo probably has a patient portal (an email kind of set up that you can use to communicate with doctors, get test results, etc.). Most doctors have their RNs check the patient portal for questions and someone will usually get back with you if you have a problem and/or serious question.

Will you try that?

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If I'm not better today I will. So far I am keeping food and water down. I'm takig zofran for nausea.

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@rose4622

If I'm not better today I will. So far I am keeping food and water down. I'm takig zofran for nausea.

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Please take care of yourself, @rose4622. I feel concerned for you. Praying that you have a better day and that all goes back to normal.

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I learned a valuable lesson about mindfulness after that bonk on my head. Feeling better but still some vertigo and nausea. Much improved!

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@rose4622

I learned a valuable lesson about mindfulness after that bonk on my head. Feeling better but still some vertigo and nausea. Much improved!

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Good to hear that you are feeling better and also about the mindfulness lesson. It's tough to learn the hard way, but nonetheless it is important! Good to hear from you, @rose4622

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Did anyone have gamma knife after craniotomy for AN? Did you suffer any side effects from it? I have been through so much and I'm weary. I have an MRI next month and my surgeon scheduled me to see a radiologist after. I'm worried.

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